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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: 3 hours ago | Replies (622)

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@katwhisperer

@windyshores thank you for sharing your experiences across so many helpful posts!

Do you know if there are any published articles or comments from other physicians or Tymlos themselves re: this appealing option to start lower & gradually increase by # of clicks?

None of my docs have heard of this - their Tymlos reps don't seem to know or mention it either. Just wondering if it's something your doc was smart enough to suggest because you experienced problems prior - or if it's a known approach across the board?

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Replies to "@windyshores thank you for sharing your experiences across so many helpful posts! Do you know if..."

@katwhisperer I came up with the idea of starting Tymlos at a low dose, myself. My doctor was delighted. I also called Radius (the manufacturer of Tymlos) to talk to them about it. I told them they might be losing customers who react badly at first to a full dose.

I was never able to take Forteo. I went to an immunologist to try to get on it, years ago, and spent a day in the office trying to get desensitized with small doses. I wasn't thinking of that but maybe it influenced me.

I ended up in the ICU when I tried a higher dose on Tymlos, with afib. I can't say for sure that it was caused by the med, since I have had episodes once a year since 2015. But it felt related. I was very determined to get on Tymlos and starting low was the only way.

My doctor was happy when I reached 6 clicks and for more than a year I have been doing 7.. I still cannot do 8!

There is no harm in this at all so why not? Why would anyone object?! These are hormonal meds. Most people say their body adjusts to them over time and any side effects like headache, dizziness, fast heartbeat, or nausea go away. That has been my experience too.

I have quite a few fractures. Mainly because I could not get on any meds or my doc didn't want to risk them. I come on this forum to tell people you do not want fractures! And you can feel strong (I was doing sword tai chi) and still fracture. Osteoporosis does not have symptoms until you fracture!