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Has anyone here nebulized Budesonide/Pulmicort and tapered off?
Lung Health | Last Active: Jan 5, 2023 | Replies (9)Comment receiving replies
Yes, I have been using levabuterol w my saline nebs for three plus years now. I was recently given a Levabuterol inhaler also but haven’t used it yet.
Before getting the Acinetobacter Baumanni in September and mt two hospital stays trying to clear it, I never had any of these problems with Bronchospasming or airway sensitivities or excess mucus. The protocol has been to neb 3-4 times a day w levabuterol, saline, and the Budesonide.
I’ve experimented with my 7%, my 3%, my.9% and nothing seems to really thin this excessive mucus enough. My cultures are clear - except for the MAC. Either you or someone else suggested trying Mucomyst on the other group forum.
My gut says my poor lungs are just getting too much stimulation/irritation from all the nebbing— but if I stop, then the mucus builds up. So I’m thinking maybe try going off the Budesonide to see if it makes any difference — I can always go back on.
Sorry for all the questions, It’s been four months now and I’m scared this is my permanent lung state now….
Replies to "Yes, I have been using levabuterol w my saline nebs for three plus years now. I..."
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I hear you when you say "...My gut says my poor lungs are just getting too much stimulation/irritation from all the nebbing— but if I stop, then the mucus builds up..." I have wondered about that with some people who seem to have invest a lot of time in airway clearance. So, is it possible that all the irritation by the nebs is increasing mucus production? Or, is it possible that the A. Baumanii infection or the drugs that treated it has really sensitized your lungs, so your old regimen needs to be changed up to calm things down?
So, no way I would try to prescribe a routine for you, but there are other things that can help thin mucus - montelukast (Singulair), guaifenesin (Mucinex or similar - without additives), N-acetyl Cysteine or glutathione tablets/capsules (to avoid introducing any more substances into your lungs) and LOTS of water. Could you ask your doc about using one or more of these?
Also, since your doctor suggested you could go off the budosenide, why not try it? Since you are using it 3-4 times a day, just reduce by once a day every 3-4 days if you are not comfortable with "cold turkey."
Finally, nebulized levalbuterol is irritating to some people, so you could ask the doc about opening your airways with 2 puffs of the inhaler instead. This is what I do unless I am in an active asthma attack.
I'll leaves you with one final thought, from my ID doc 4 years ago "MAC is slow to grow and slow to go" - since this has been going on for years, changes and improvements come very slowly as well. Hang in there!
Sue