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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)

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@blossomt

I’m knew to this thread. I was diagnosed with lichen sclerosis about 5 years ago and it has drastically affected my life. Sex is out of the question and I have itching most nights. I have it controlled with a steroid cream that I use when the itching becomes more intense but I’d like more information about the laser treatment. Can I hear from anyone who has had tuis treatment? Or any recommended treatments besides the steroids creams? Any recommendations on vaginal moisturizers that won’t cause a flare up?

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Replies to "I’m knew to this thread. I was diagnosed with lichen sclerosis about 5 years ago and..."

It’s miserable in all the ways you mentioned. I have had 1 of3 treatments of Mona Lisa laxer treatments and I already feel a great improvement. It’s pricey but it’s worth it . I am still careful not to do anything that I know may cause irritation but I know it’s considered the only way to stop its progression and give relief of symptoms. Go for it !!!

@blossomt, I have had LS for over 10 years so have gone through various products. For itching, I took Hydroxyzine 25 mg. every 8 hours. I no longer itch, but the burning is awful. I am on either my fourth or fifth compounded ointment Lidocaine 6% with Aquaphor and it helps a little. I just saw my gyn on Tuesday (I go every 3 months) and I am now using 1 gr. of Premarin every night for 2 weeks then 1 gram every other day. I suppose at some point I will be back to 1 gr. twice a week. I have ordered a set of dilators and I am supposed to insert for 10 minutes at night using a little lubricant on the end of the dilator. You can imagine what the goal is for these dilators, increasing the size as I am able. I continue to use Halobetasol twice a week. What a week this has been. First, my gyn, then my eye doctor to pull out ingrown eyelashes, then another doc who diagnosed Eustachian tube disfunction. I supposed this came from my head cold that turned to pneumonia. It is always something and my dear husband has to drive me everywhere. We have nothing planned for today. Yay! With all good wishes, @joybringer1