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intractable facial pain, complex case

Ear, Nose & Throat (ENT) | Last Active: Jul 2, 2023 | Replies (22)
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@nrd1

@carterbeauford-

Thanks for the clarification.

I’m curious pre first surgery what was your chief complaint that prompted you to see an ENT?

And if chronic rhino sinusitis was the diagnosis, what form of maximum medical therapy was tried before a CT scan? I know there is a lot of grey area in this protocol and every provider is different, which is a problem.

And your 2nd surgery, I’m assuming they deemed the 1st as incomplete?

And what ongoing topical therapy was agreed upon for the ongoing management of the inflammatory process of CRS?

I’m asking to simply understand the condition pre/post.

I’ve seen many ENTs like yourself. At 2 major University systems as well. They have all been very honest with me about what they know/don’t know about the “disease” state they diagnose. Turns out there is a lot more that they admit, they don’t know.

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Replies to "@carterbeauford- Thanks for the clarification. I’m curious pre first surgery what was your chief complaint that..."
carterbeauford | @carterbeauford | Jan 4, 2023

I don't remember much other than the nasal burning but I'm sure I was having what I believed to be sinus headaches and frequent sinus infections and postnasal drip that always turned into a cold. My grandparents had a condo in Palm Springs and every time I went to the desert air I got sick. First ENT tried flonase, when that didn't work he went up there and ballooned my maxillary sinuses and straightened my septum. When I kept having nerve pain after recovery he tried singulair. Second ENT said first ENT didn't do a very good job straightening my septum and did a revision and ballooned all my sinuses. When I kept having nerve pain after recovery he tried allergy shots. The only other treatment I've had for CRS is the two clarifix nasal cryosurgeries. The second one performed by my current ENT was specifically to try to freeze the nerves that hurt. He even said let's shoot a second canister of CO2 up the right side. And nothing.

I hardly ever get sinus infections anymore, if ever. Hardly ever get sick anymore either. Sinuses drain great, all the obstruction is from nerve inflammation.

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