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intractable facial pain, complex case

Ear, Nose & Throat (ENT) | Last Active: Jul 2, 2023 | Replies (22)
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@carterbeauford

As far as the referral to neurology, I've seen 8 neurologists at Cleveland Clinic. They attempted to treat me with antiepileptics, biologics for migraine and botox, all of which gave no relief. Tried gabapentin, tegretol, topamax, indomethacin, and aimovig. This is not trigeminal neuralgia or migraine.

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@seekinginfo | @nrd1 | Jan 4, 2023

@carterbeauford-

Thanks for the clarification.

I’m curious pre first surgery what was your chief complaint that prompted you to see an ENT?

And if chronic rhino sinusitis was the diagnosis, what form of maximum medical therapy was tried before a CT scan? I know there is a lot of grey area in this protocol and every provider is different, which is a problem.

And your 2nd surgery, I’m assuming they deemed the 1st as incomplete?

And what ongoing topical therapy was agreed upon for the ongoing management of the inflammatory process of CRS?

I’m asking to simply understand the condition pre/post.

I’ve seen many ENTs like yourself. At 2 major University systems as well. They have all been very honest with me about what they know/don’t know about the “disease” state they diagnose. Turns out there is a lot more that they admit, they don’t know.

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