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DiscussionMesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Replies to "Just want to make a note that although black stool is a symptom of bleeding, and..."
Hello @danielcamp, Nope the comment was not meant for you specifically, Sorry, it was meant for everyone. I am speaking from experience and made the comment because there are a lot of sore tummy's out there reading these posts and possibly some taking Pepto Bismol/Bismuth on occasion. I didn't want them freaking out thinking they had internal bleeding, we have enough problems.
How are you doing? any progress with the doctors?
Its ok, just making sure cause I did not want to seem rude and not answer your question. As for everything, just the usual tired and my chest is hurting more, out of breathe a lot. But I am seeing a surgeon Wednesday, so here is hoping he does what is needed. I really need to start getting treated for whatever it is.
I have to ask is it normal to be tired to the point you cant even walk 5 feet without needing to lay down? Or that your abdomen is so hard it is like hitting bone.
Sorry you have to deal with that. I have had bloating and it does make it difficult to breathe but I never had it quite that bad. Mine would come and go. I had to eat very small amounts of soft food which did help to some degree.
I still deal with fatigue but not that bad. We have had members on this board mention extreme fatigue. One is @dennisl27. He is having surgery on the 15th of this month and mentions his struggles with severe fatigue. You might want to look back through the posts to see his comments.
I'm glad to hear you are seeing the surgeon Wednesday, please keep us posted, and of course I'll pray for you.
@danielcamp, This link has some information that may answer som of your questions. https://rarediseases.org/rare-diseases/mesenteric-panniculitis let me know if it doesn't work.
ok now i ve gone to local GI specialist sent by my PCP. nope he sending me to USF in Tampa next city. says there is noone local. i am calling Mayo but im not sure my insurance will cover all expenses. Mayo i believe takes 5000 down outside of your insurance which is too expensive for me now. i have had no treatment from a specialist all this time more then a year. i am in great pain. and on erythromycin for over 60 days to speed up my intestines. dr said they move too slow i am at risk for a blockage. on a special diet . if a Gi speicalist doesn t care for this who does?
Hi @snoopdog,
Might I suggest you also call Mayo Clinic's Patient Account Services at 800-660-4582
For further information, also check out this resource about billing and insurance from Mayo Clinic: http://mayocl.in/2hpba1s
This other link, http://mayocl.in/2kk2hF8, provides information on insurance at Mayo Clinic which includes:
• Insurance types
• Approval from insurers
• Guidance for denied claims
• International patients
• Uninsured (self-pay) or underinsured patients
• Insurance FAQs
• Glossary of billing and insurance terms
• Contact numbers and online form
@snoopdog, I'm glad that you are using your voice, and being an advocate for your own health; the Connect community is here to support you.
If you are talking to me it was already checked. Black stool is not from food, or medicine taken.