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DiscussionIPF - early stages of diagnosis...so many questions
Lung Health | Last Active: Jan 6, 2023 | Replies (8)Comment receiving replies
Replies to "I was diagnosed with pulmonary fibrosis one year ago based on CT scans and breathing tests...."
I'm glad you're doing well all things considered and can still get out on the course. I'm gathering that the key to keeping the disease at bay is to manage any inflammation. Our Dr said hubbys inflammation is whats causing progression. Im guessing they already had you try prednisone? I did some digging on IPF and found that NSIP is very close in symptoms at first glance and IPF can be misdiagnosed if a biopsy is not done to confirm. Our Dr agreed and has hubby going for a biopsy and if its the cellular version, hes planning to prescribe 60mg of prednisone for about 3mo to kill the inflammation. If its the other version, fibrotic, he will be put on autoimmune/ antifibrotic meds. You're price on the meds is outrageous! I spoke to a woman yesterday who said she worked with insurance and "CVS specialties rx" and they got the price of her meds down substantially. Good luck on your follow-up!