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Weird intermittent quick inhale/exhale at random intervals

Lung Health | Last Active: Sep 26 2:27pm | Replies (30)

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@diane50

Hi everyone,
I am in the hospital and can't seem to really get any answers. All I am getting is according to your test results, you are fine. I to have burst of involuntary exhale, at first it was just embarrassing because I didn't even realize I was doing it until others asked me about it. I have been doing this for about a year now and it's daily, quite often but was only annoying and embarrassing at first. It seems to be getting worse and I can't find any answers. I have Myasthenia Gravis and it is now to the point that it causes diaphragm weakness, which means it's triggering Myasthenia Gravis. I usually can just put ice on my chest and rest to get strength back to my diaphragm. A little nervous but it works so ok. Now I am in the hospital being treated for congestion with severe consistent coughing which I thought was the normal sinus/seasonal allergies draining and turning into bronchitis but they ran test and did X-rays and can't seem to diagnose me with anything. I am still here because of the unknown everything is normal has triggered my MG again causing diaphragm weakness. I was stuffed with steroids and back to back breathing treatments and finally got the coughing under control and the drainage reduced as well as the wheezing reduced. I just had my mestinon and this unexplained outburst of quick, deep, involuntary forced exhale has my upper chest through my back in pain and back to weakness in my diaphragm and I can't seem to make it stop. I don't even know what specialist doctor to ask because no one seems to know. Is there anything you do to help it stop. I actually tried the clinching of my cell phone and it did not seem work for me. I have been able to slow it down some with closing my eyes and going to my happy place and practicing relaxation techniques I learned to help when I go into a MG Crises, but it doesn't last. I need this to stop because with Myasthenia Gravis, it is more then just annoying for me. It can get dangerous. Any suggestions are welcomed. Thanks.

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Replies to "Hi everyone, I am in the hospital and can't seem to really get any answers. All..."

I’m new to this forum and just found your message. I thought I would share that I have been having quick involuntary intakes of breath for years. I only notice it when I’m at rest such as quietly reading or watching television. It feels like what I imagine happens during the night with someone who has sleep apnea. I assume it might be that I’m so relaxed my oxygen saturation level has dropped? But, perhaps there is something else going on. Interestingly, I was diagnosed with myasthenia gravis a couple months ago after several years of chasing after various autoimmune diagnoses. I think we finally have it right as my symptoms are spot on with gMG. I hope you are feeling better. Did they ever figure out what was going on with your involuntary exhale?