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BillyMac65 (@billymac65)

Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Oct 23, 2021 | Replies (1398)

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@dennisl27

I thought many of you would find the attached article interesting.
http://www.cnn.com/2017/01/04/health/new-organ-mesentery/

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Replies to "I thought many of you would find the attached article interesting. http://www.cnn.com/2017/01/04/health/new-organ-mesentery/"

How are things going for you if you don’t mind me asking?

Hi Von
Things have been going alright for me I guess. I was pretty disappointed when my GI took me off of Prednisone after only being on it for 3 days. I had 1 good day on it but 2 days of pain and the same discomfort. I had another CT scan and this time with contrast. An abdominal mass was found and I have surgery scheduled on February 15. They will send it out for pathology and biopsy it so I’ll know more after my follow up with him on February 28th. How have you been?
Dennis

I have been good, thank you for asking. Still asymptomatic.Thanks for responding I have been wondering how you were doing. Will you have a fine needle biopsy? The main thing is to rule out any other issues I guess so that they can focus on the MP treatment. I think the abdominal mass is pretty typical in the diagnosis. I’m not 100 percent sure but most examples of CT’s I’ve seen refer to It along with the lymph issues. I really hope everything works out well with you regarding this test, I’m sure it will so you shouldn’t worry much, hard not to right. I hope the inflammation resides and you can get some relief. Please keep us posted and let us/me know how the test comes out. Best wishes for you, I will pray for you, and your family.von

Thank you for your thoughts and prayers. Dealing with this as well as my wife’s chemo treatments for her stage 4 breast cancer has been a a lot but we are just trying to go 1 day at a time. I believe that you are right about the fine needle biopsy. I will keep you posted. All my best, Dennis

this is really scary cause the doctor at the local cancer center has never seen mesentric panniculitis and has over dosed me on steroids according to the er dr and my last pcp. now i have cushings  and my last cat scan says enlarged heart and lung not real right. could you help  me with the correct dr i am to care with. is it a endocrinologist or gi specialist? i currently have no care specialist. plz write.

and erythromycin for 30 days what treatment is this?

Hello @snoopdog, it sounds like you are need of an expert opinion or second opinion. One thing that I have learned from the fantastic members of Mayo Clinic Connect is that you should never give up until you find the right physician that can help you the best.

If you are interested in getting a second opinion from Mayo Clinic, here is the link to do so, http://mayocl.in/1mtmR63.

THANK YOU 

Hi @dennisl27, you and your wife have a lot going on right now. I understand taking it one day at a time. I just want to let you know that we also have a Caregiver’s group on Connect: https://connect.mayoclinic.org/group/caregivers/ where you can connect with other people caring for a partner should you wish to.

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