1. < Gynecologic Cancers

Diagnosed with endometrium adenocarcinoma few days ago

Posted by whengzy19 @whengzy19, Nov 9, 2022

Hi 👋 I’m 48 years old and diagnose with cancer . What kind or type, I don’t know yet.. I’m still waiting for the referral response for oncologist referred by gynaecologist. The gynaecologist performed biopsy through colposcopy and test results that’s there’s an abnormalities same result on my Pap smear. He said that he can only perform surgery for me for hysterectomy if cancer is on stage 1, if that is stage 2 , then he’ll need to referred me to oncologist. So pretty obvious it’s not stage 1 because he referred me to oncologist. I’m too anxious about this, really want to know the prognosis on my case. Now I’m in the agony of knowing what really is my condition and what is going on in my body. As for myself I know I’m a healthy women, no drinking and smoking habit.
Appreciate all the response. And comments on how to cope my anxiety and how to accept the fact that I have cancer and how to manage it. I’m still on the process of accepting and digesting all the news for myself.

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val64 | @val64 | Dec 28, 2022
In reply to @fasting21days "I am 50 super healthy , and same diagnosis . Also did genetic test: it’s a..." + (show)
@fasting21days

I am 50 super healthy , and same diagnosis . Also did genetic test: it’s a Lynch syndrome- all cancers are welcome with this condition.
I was scheduled for surgery: cancelled twice. Thinking to do radiation, as can’t get to terms with removing all my organs and surgical menopause.
Doing fasting ( one was 13 days)
Guit dairy , grains, pasta, all bread, all animal products- a bit tough, but my tumor didn’t grow actually shrank by a bit. Something is working. Also, take FenBen (Anti-parasitic drug) which is connected to cancer.
Urinotherapy too.
Best,

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Hi fasting21days. It seems like you're torn about whether to get surgery, since you've scheduled and cancelled it twice. Assuming there isn't any obvious spread yet, let me vote for scheduling it a third time and going through with it. The robotic-assisted laparoscopic surgery that most women get really isn't bad at all. In and out in one day, and you start feeling pretty good 2-3 days later. Going through menopause suddenly probably isn't fun (I wouldn't know), but it's not so fun doing it slowly either (that I do know). And since you're 50, it's going to happen to you sometime in the next 5 years anyway.

Is it possible that cures off the internet work for some people? Sure. But they haven't been tested and trying them in this situation is a real crapshoot.

Call the doctor and get it out of there.

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2 replies
fasting21days | @fasting21days | Dec 28, 2022
In reply to @val64 "Hi fasting21days. It seems like you're torn about whether to get surgery, since you've scheduled and..." + (show)
@val64

Hi fasting21days. It seems like you're torn about whether to get surgery, since you've scheduled and cancelled it twice. Assuming there isn't any obvious spread yet, let me vote for scheduling it a third time and going through with it. The robotic-assisted laparoscopic surgery that most women get really isn't bad at all. In and out in one day, and you start feeling pretty good 2-3 days later. Going through menopause suddenly probably isn't fun (I wouldn't know), but it's not so fun doing it slowly either (that I do know). And since you're 50, it's going to happen to you sometime in the next 5 years anyway.

Is it possible that cures off the internet work for some people? Sure. But they haven't been tested and trying them in this situation is a real crapshoot.

Call the doctor and get it out of there.

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Thank you for your kind encouragement and advice-
Very much appreciated and needed- thank you!
The oncologist advices radiation but with my lunch syndrome- not sure.
The reason I ran away yesterday from my surgery table is that I have had 2 units of blood donation( as I am not vaccinated and wanted to make sure I stay with the same blood) one unit was discarded so that was one big factor and I was in worst emotional distress of my life so even the surgeon doc said he won’t do the Witt for me today I am not ready. But right now need to decide : to try radiation first or just schedule the surgery. Please advice. Thank you

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1 reply
rose53 | @rose53 | Dec 28, 2022

Val 64. I agree with what you said about having the surgery especially if robotic. 🙂

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val64 | @val64 | Dec 28, 2022
In reply to @fasting21days "Thank you for your kind encouragement and advice- Very much appreciated and needed- thank you! The..." + (show)
@fasting21days

Thank you for your kind encouragement and advice-
Very much appreciated and needed- thank you!
The oncologist advices radiation but with my lunch syndrome- not sure.
The reason I ran away yesterday from my surgery table is that I have had 2 units of blood donation( as I am not vaccinated and wanted to make sure I stay with the same blood) one unit was discarded so that was one big factor and I was in worst emotional distress of my life so even the surgeon doc said he won’t do the Witt for me today I am not ready. But right now need to decide : to try radiation first or just schedule the surgery. Please advice. Thank you

Jump to this post

Oh my, I didn't realize you just bailed on a surgery yesterday. How stressful! I don't know any of the details of your case, and I'm not a doctor, so my advice is based on my own experience and research, as well as family experience.

Have the surgery. Get that cancer out of your body.

Are you being scheduled for a robotic-assisted laparoscopic surgery? As far as I know, it's uncommon for them to do a transfusion during that. I think they had me sign a form giving them permission to give me blood if necessary, but they didn't do it.

Reasons:
1) Surgery is the recommended first treatment for endometrial cancer in virtually all cases. It is quite successful, and for low grade cancers that haven't invaded very far into the uterus, often no other treatment is necessary. Surgery has been the main treatment for a long time. My grandmother's sister had a hysterectomy + ovary removal for endometrial cancer 80 years ago. (She was in her 20s at the time, and lived another 60 years of a full, interesting life, with a happy marriage.)

As far as I can tell, the only times they don't do surgery first are if the patient is so unhealthy that they can't handle the surgery, or if the patient chooses not to. Possibly also if the cancer has already spread widely. In these cases, they may do radiation therapy, but since so few women have radiation without having a hysterectomy first, it's hard to know how well it works.

2) If I were choosing between the experiences of having the laparoscopic surgery and having pelvic radiation therapy, I'd pick the surgery. (I had a robotic-assisted total hysterectomy + bilateral salpingo-oophorectomy in August. I have not had pelvic radiation therapy, so I'm not speaking about that from personal experience. I have only read about it.) The surgery is fast; you're asleep while it happens; and in a week or so, you can mostly go about your business. Pelvic radiation involves going to the hospital most every day for several weeks, and leaves you reaching for the Imodium. Some people have worse side effects that last after the treatment is over.

If you're having an abdominal hysterectomy, the recovery takes longer, so the experience might be more comparable to the radiation. But I still think you should have it done for the first reason.

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1 reply
fasting21days | @fasting21days | Dec 28, 2022
In reply to @val64 "Oh my, I didn't realize you just bailed on a surgery yesterday. How stressful! I don't..." + (show)
@val64

Oh my, I didn't realize you just bailed on a surgery yesterday. How stressful! I don't know any of the details of your case, and I'm not a doctor, so my advice is based on my own experience and research, as well as family experience.

Have the surgery. Get that cancer out of your body.

Are you being scheduled for a robotic-assisted laparoscopic surgery? As far as I know, it's uncommon for them to do a transfusion during that. I think they had me sign a form giving them permission to give me blood if necessary, but they didn't do it.

Reasons:
1) Surgery is the recommended first treatment for endometrial cancer in virtually all cases. It is quite successful, and for low grade cancers that haven't invaded very far into the uterus, often no other treatment is necessary. Surgery has been the main treatment for a long time. My grandmother's sister had a hysterectomy + ovary removal for endometrial cancer 80 years ago. (She was in her 20s at the time, and lived another 60 years of a full, interesting life, with a happy marriage.)

As far as I can tell, the only times they don't do surgery first are if the patient is so unhealthy that they can't handle the surgery, or if the patient chooses not to. Possibly also if the cancer has already spread widely. In these cases, they may do radiation therapy, but since so few women have radiation without having a hysterectomy first, it's hard to know how well it works.

2) If I were choosing between the experiences of having the laparoscopic surgery and having pelvic radiation therapy, I'd pick the surgery. (I had a robotic-assisted total hysterectomy + bilateral salpingo-oophorectomy in August. I have not had pelvic radiation therapy, so I'm not speaking about that from personal experience. I have only read about it.) The surgery is fast; you're asleep while it happens; and in a week or so, you can mostly go about your business. Pelvic radiation involves going to the hospital most every day for several weeks, and leaves you reaching for the Imodium. Some people have worse side effects that last after the treatment is over.

If you're having an abdominal hysterectomy, the recovery takes longer, so the experience might be more comparable to the radiation. But I still think you should have it done for the first reason.

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Thank you -again, very much- that helps!
I will now have a third time scheduled surgery, and hopefully this time I will have enough blood to cover myself as I am very sensitive to the issue of vaccinated blood as I am not, so that’s my reason.
But I feel a lot better to read your letter - thank you!
I will be more prepared for my upcoming another and last attempt.
Perhaps in a month as I have new insurance starting with the new year of 2023.
And this time yesterday,, was just could not do it , was too scared , thought my body would go into some shot down- was very much distressed as never in my life even the surgeon refused to do the surgery.
With appreciation,
S

REPLY
whengzy19 | @whengzy19 | Jan 2, 2023
In reply to @naturegirl5 "@whengzy19 First the diagnosis of endometrial adenocarcinoma which is so frightening and then the delay because..." + (show)
@naturegirl5

@whengzy19 First the diagnosis of endometrial adenocarcinoma which is so frightening and then the delay because of your low hemoglobin count. It's normal to have a lot of anxiety leading up to the surgery. Finally your surgery was scheduled and it's over. Hopefully you are at home and resting and the Tylenol and naproxen is helping with the pain. With a total abdominal hysterectomy I imagine it will take some time before the pain is less and you feel some energy come back.

When you see your oncologist you will probably get the pathology results. It's when the pathologist examines the tissue that was removed that the final diagnosis is made along with the stage and your oncologist can talk with you about whether you need any more treatment (chemotherapy, radiation therapy, immunotherapy).

Endometrial Cancer Stages

-- https://www.cancer.org/cancer/endometrial-cancer/detection-diagnosis-staging/staging.html

How are you feeling today? Do you have family who are taking care of you while you recover?

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Hi Helen
I’m recovering smoothly now. My first and 2nd day are the hardest as I can’t get up by myself from my bed, my daughter need to assist me to get up. Luckily I have my mom lives with me and take care of me. It’s 10 days pass now after my surgery, I can walk more faster now than the previous day. Just noticed that I can’t sit long or stand long as I feel pressure and heaviness on my pelvic area. My 5 incisions looks dried now but the stitches still there.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Jan 4, 2023

@whengzy19 Thank you for checking back in and letting me know that are doing well. It's so good that your mom lives with you and your daughter is there to help take care of you. It takes awhile for your "insides" to heal even though it might not look like it on the outside. Maybe that's why you feel some pressure or heaviness in the pelvic area? When do you next see your surgeon?

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1 reply
whengzy19 | @whengzy19 | Jan 4, 2023
In reply to @naturegirl5 "@whengzy19 Thank you for checking back in and letting me know that are doing well. It's..." + (show)
@naturegirl5

@whengzy19 Thank you for checking back in and letting me know that are doing well. It's so good that your mom lives with you and your daughter is there to help take care of you. It takes awhile for your "insides" to heal even though it might not look like it on the outside. Maybe that's why you feel some pressure or heaviness in the pelvic area? When do you next see your surgeon?

Jump to this post

I have schedule on January 16th to discuss her findings then January 18th for my 1st chemotherapy. I’m eager to see my oncologist surgeon on the 16th. As after my surgery gave me schedule of chemotherapy not even discussing what’s her findings yet. Curiosities while recovering lingering on me.

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elliealto7 | @elliealto7 | Apr 21, 2023

Can anyone recommend 2 or 3 websites for a fasting regiment to do during radiation treatments and diet similar to @fasting21days? Endometrial clear cell carcinoma stage 0 confined to uterus, radical hysterectomy, age 59, now 5 radiation treatments. 2 more to go. Thanks!

REPLY
2 replies
chrissiebee | @chrissiebee | Apr 24, 2023
In reply to @val64 "Hi fasting21days. It seems like you're torn about whether to get surgery, since you've scheduled and..." + (show)
@val64

Hi fasting21days. It seems like you're torn about whether to get surgery, since you've scheduled and cancelled it twice. Assuming there isn't any obvious spread yet, let me vote for scheduling it a third time and going through with it. The robotic-assisted laparoscopic surgery that most women get really isn't bad at all. In and out in one day, and you start feeling pretty good 2-3 days later. Going through menopause suddenly probably isn't fun (I wouldn't know), but it's not so fun doing it slowly either (that I do know). And since you're 50, it's going to happen to you sometime in the next 5 years anyway.

Is it possible that cures off the internet work for some people? Sure. But they haven't been tested and trying them in this situation is a real crapshoot.

Call the doctor and get it out of there.

Jump to this post

I had endometrial cancer at age 50 and had not yet started menopause. I had a hysterectomy with ovaries removed. The effect of going into immediate menopause caused very difficult night sweats. I was put on estrogen to eliminate them which it did. But 7 months later I developed breast cancer so was taken off estrogen immediately. When I went off estrogen, fortunately the night sweats did not return. That was back in 1997 so I'm unaware what the solution is now for the night sweats.

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