← Return to Choice of immunosuppressants with Liver tx ---Opinions

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@bosco17

They want to put me on .50 Tacrolimus but im afraid of the side effects ---- high blood pressure, high cholestorol, kidneys, interactions with my medications Eliquis and Clonazapem. I used to take a cni-cyclosporine when I first had my transplant and had many side effects with HBP, caused me to have heart attack from clogged arteries and needed triple by pass surgery 2 years after taking it. Im a complete mess --repeated diverticulitus and stomach ulcers, might lose my colon . I dont think I have long to live
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Replies to "They want to put me on .50 Tacrolimus but im afraid of the side effects ----..."

Hi @bosco17 😊
I am so sorry to hear your experience with Cyclosporine. That sounds awful. No wonder you are concerned with any medication change. But I want to tell you, when you mentioned the possibility of taking only .50mg daily of Tac, I instantly became jealous.
I take 6mg each day, a much higher dose. I am happy to report there has been no adverse reactions with my kidney (I am a kidney transplant patient so my team is very diligent to make sure nothing is harming my beautiful new kidney, especially an immune suppression medication that could be changed if needed). My blood pressure has been fine, but my cholesterol is slightly elevated. (Remember I am taking a much higher dose than what you will be taking).
Only .50mg each day sounds like a dream! Of course we never know how each person will react to a medication, but I am very hopeful that your experience with this new med change may be a very positive one for you.
I also feel confident that your transplant team has reviewed your med list to make sure there are no possible drug interactions, but you can always double check with them so you can be confident too. That's important for your mental state.
Are you in pain from your diverticulitis and ulcers? Are you being actively treated by a Mayo GI specialist or a GI specialist at another transplant hospital for coordination of care with your transplant team?
Also, don't forget to join the Mayo Connect group for Digestive Health too. The folks on that group are like our Transplant group...terrific!! They have a wealth of patient experience and are always willing to share and help each other. It's just like our Transplant family on Mayo Connect so don't hesitate to join. We are all here for you!