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Any suggestions for chronic shortness of breath with PV?

Blood Cancers & Disorders | Last Active: Jan 11, 2023 | Replies (20)
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@jerrlin

I also have PV and shortness of breath but you are right, if you stop for a moment it does adjust. I was told not to have iron rich foods as it feeds the growth of red blood cells.I also am noticing hair loss and Dr says it’s not from the phlebotomy’s. Any suggestions on this. I have had PV since 2019

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Replies to "I also have PV and shortness of breath but you are right, if you stop for..."
chadknudson | @chadknudson | Jan 3, 2023

I have found that when I'm in full nutritional ketosis, the time between my phlebotomies can increase from 4-weeks to up to five months! A diet that puts you in nutritional ketosis is very low in carbohydrates and sugar in any form. You should consult with your medical care team before making a significant change to your diet to ensure that it is safe for you to do. This has been my personal experience and your milage may vary, but it does tend to make sense that you deprive the cancer of the food sources that feed it it will slow the blood production down.

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inevanmac | @inevanmac | Jan 8, 2023

I too have noticed hairloss. I’m supplementing with Priorin and the loss has decreased quite considerably, but be patient. Takes a couple of months.

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