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Banding Esophageal Varices

Transplants | Last Active: Feb 8, 2023 | Replies (36)

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@katebw

@yaminaburleson I am 14 months post liver transplant and my diagnosis of cirrhosis- end stage liver disease- in March 2021 and it was sudden. I was driving and got very confused, taken to an Emergency Department and from there I feared for my life. I was 53 and my mother was 82. At one point, when I had to be rushed to the ER , I begged my wonderful mother not to let me die! How awful that must have been for her to hear. But she did save my life by letting me live in her sweet home, and helping to establish a healthy routine so that I could get through 7 months preparing for a liver transplant. Now I am a healthier, energized person and now I’m taking care of my own mother who is aging and getting weaker. I bring her healthy meals, take her places, and enjoy her company.

You may want to ask the GI about a referral to a liver transplant team for a complete evaluation. You can ask about your son’s MELD score which comes from bloodwork and helps tell doctors how “bad” your son’s liver is and therefore where he would be placed on a transplant list. Ask about the medications he takes for liver disease, and what they do for him.

My local gastroenterologist recommended, while I was very sick with liver disease, to eat a high protein diet that included meat and also plenty of other non meat protein including beans and rice, tofu, yogurt. I was told to drink lots of water to protect my kidneys, and to exercise everyday I could. All of this plus medicine plus my loving mother helped me steady myself and feel like I would live. The beginning was hardest. Lots of care to you and your son.

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Replies to "@yaminaburleson I am 14 months post liver transplant and my diagnosis of cirrhosis- end stage liver..."

Happy New Year and tank you so much for the advice. Our case is similar to yours. I am 67 and my son is 49. We live together in the same house we call home. I didn’t notice that something was wrong with him until we were traveling from Florida to Washington DC. Since he always wear baggy clothes because he’s always at home due to other health challenges. We rushed him to the emergency in Virginia. They took him immediately even though the place was packed. They actually saved his life. They put him immediately on potassium and other meds. When we came back home. His gastroenterologist took over and run her own blood tests and the scans, ultrasound…etc. she didn’t change the meds prescribed for him. In our last visit, she told us the the blood tests came negative, he doesn’t need treatment for Hepatitis C and his jaundice is fading. He still need to have Parantescis every 2 weeks. And something like endoscopy that have a long name I can’t memorize. It’s to take a look at his esophagus and part of intestinal system. Repair what need to be repaired of some kind of vessels. She told us that he has to finish 6 months on meds before she can discuss the transplant. She is hopeful that if he continue to stay away from alcohol and tobacco and takes care of his health and takes him meds, he might not need the transplant. I think that he will not be a candidate for a transplant because of his health amelioration. We keep our hope and prayers and see what comes in 4 months.
I keep you posted. I am glad that you are in good health and you got your life back together.
I will definitely need more advice from you going along with what you went through.
May God bless you and your mother 🙏💕