Anyone been diagnosed with arachnoiditis after spine surgery?

Posted by jelizabeth @jelizabeth, Feb 18, 2019

Has anyone been diagnosed with arachnoiditis or cauda equina syndrome after a L5-S1 surgery?

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willisann | @willisann | Oct 20, 2022

In reply to @sarsarson "This sounds so difficult!! I hope Cymbalta and Gabapentin will give you some relief." + (show)

thank you!

dolly1 | @dolly1 | Oct 20, 2022

In reply to @willisann "thank you!" + (show)

That doesn't work either. Only makes me have multiple side effects which is disgusting.

m2m | @m2m | Oct 21, 2022

Yes and it was caused by meyoleogram, using a oil braised contrast dye.
This was recently seen in Two MRIs.

dolly1 | @dolly1 | Oct 24, 2022

In reply to @willisann "thank you!" + (show)

Those 2 meds only gave me terrible side effects.

lynetteh1 | @lynetteh1 | Dec 8, 2022

In reply to @lisalucier "Hi, @jelizabeth - I'd like to invite into this conversation members familiar with arachnoiditis or cauda..." + (show)

I had T12 - S1 surgery on Dec. 8 2021 and revision on July 1 2022. I was diagnosed with Adhesive Arachnoiditis in August 2022. I’m trying to learn as much as I can about the disease as the doctors don’t give much hope.

lynetteh1 | @lynetteh1 | Dec 8, 2022

I have read a lot of Dr Tennants materials and listened to his pod casts which are very informative. I am trying his protocol fir the last week and considering corticosteroid injections. Anyone with experience with these injections? I am taking 600mg of Gaba and 10 mg of oxycodone every 8 hours for pain.

marcosjavier | @marcosjavier | Dec 11, 2022

In reply to @willisann "Thank you, the gabapentin being increased has helped some...I just hope that the cymbalta puts a..." + (show)

Hi. Can I ask who you saw at Cleveland Clinic? I’m in south Florida and looking for someone familiar with this disorder. Not sure how to private message you. New to this board.

John, Volunteer Mentor | @johnbishop | Dec 11, 2022

In reply to @marcosjavier "Hi. Can I ask who you saw at Cleveland Clinic? I’m in south Florida and looking..." + (show)

Hi @marcosjavier - Welcome to Connect. While you wait for @willisann to reply I thought I would share how to send a private message, it's pretty easy. Click on the the person's @ member name which takes you to their profile. Then click the Send Private Message link under the profile description.

You can find more information on how to use Connect in the Help Center (link in the top menu). Here's the direct link - https://connect.mayoclinic.org/help-center/.

Donald | @donfeld | Dec 31, 2022

Yes, and caused by bad surgery which getting worse as years go by.

Donald | @donfeld | Dec 31, 2022

In reply to @lynetteh1 "I have read a lot of Dr Tennants materials and listened to his pod casts which..." + (show)

I can’t handle gabapentin at all and I’m taking three times a day 15 mg of morphine. I just keep moving and make sure I exercise every day and do a lot of walking or riding a bike as you’ve got to keep your legs moving up is in your lumbar area.