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Mesenteric Panniculitis or Sclerosing MesenteritisDigestive Health | Last Active: May 10 1:48pm | Replies (1490)
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Replies to "Hi Lynn, I am so sorry you are having so much trouble finding a doctor. But..."
I am at the very beginning of my diagnosis and am wondering if I should just begin with a doctor that is familiar with MP. I have been having excruciating pain in my right upper quadrant (no gall bladder) with diarrhea off and on, bloating, indigestion etc. They found the MP on a CT scan. I have an appt with gastro next week, but want to find someone in my area that is familiar with treating this. I live in Dallas, any suggestions?
Thanks Roberta. I agree 100% about being my best advocate. I’ve already had to, so many times over the last 7 years. I was originally diagnosed in NC, & at the point that my family practitioner (best Dr EVER, I miss him very much) referred me to Duke Univ. my job transferred me to GA. I literally had to start the whole process over. For the past few years I’ve taken the “just treat the symptoms & deal with the flare-ups” approach. I’m ready to get back to searching for answers though & so is my GI. Which is why this is so frustrating! I’m getting ready to take another swing at them now. As I mentioned, I was just doing some more fact finding, when I found this site. It’s AMAZING to have the support of people who “know”!! I’ve been reading previous posts. This place has restored some of my sanity!! I’m so glad I came across this!! Thanks again!!