← Return to Tacrolimus blood levels: Do yours vary?
DiscussionTacrolimus blood levels: Do yours vary?
Transplants | Last Active: Sep 2 7:36am | Replies (39)Comment receiving replies
Replies to "Hi @rosemarya Thank you so much for your detailed and real world breakfast and adorable fasting..."
@hello1234 you are very conscientious, it inspires me! I’ve struggled with tacrolimus and getting the 12 hour spacing down. I’m back to work and I have faltered on 12 hour spacing (I can be off by an hour or more occasionally). My levels are fairly steady but not always- target range is 6-8 and I now take 1 mg am, 1 mg pm though this may not be enough (liver transplant 14 mo ago).
Since summer I gained 17 lbs which my team said happens as I’m still rebuilding muscle and meds alter metabolism and blood sugar. And yet I have a weakness for getting a cappuccino and muffin in the midday “to perk me up.” 😊. I’m now making changes and joined a gym to build muscle. I am 55 so now is the time!
I hear you about coping with your CKD for many years, the hope and worry for a transplant, and then the aftermath relief and anxiety. It sounds like you’ve come a long way and I honor you. 💜