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High Platelets

Blood Cancers & Disorders | Last Active: Feb 9, 2023 | Replies (63)

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@ingrid077

I’ve had a high platelet count close to two years. They’re calling it Thrombocythemia they did some genetic tests yesterday and I haven’t had bone marrow done yet . I’ve started having problems from bleeding taking the aspirin . He said to stop the aspirin and we could take the platelets out with a machine that removes from your blood . My feet and hand turn all shades or red and burn like fire all the time or their cold as ice turning white or blue tingling . The haven’t felt well in very long time . The blood doctor thinks I have MPN or something like that . I am a smoker which is likely not helping this situation but I’m struggling to quit it’s a very strong addiction. I hope we will all be ok . This is very scary . Really it is . Looks like there’s no end to this will be an ongoing problem.

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Replies to "I’ve had a high platelet count close to two years. They’re calling it Thrombocythemia they did..."

Hi Ingrid077, I hope you get definite answers soon. I was diagnosed in June 2022 with ET JAK2, an MPN disease. Hematologist ordered labs and did a bone marrow biopsy. You might want to consider a consult with an MPN specialist.
Eileen