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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)

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@tongannokie

I had a bone marrow test and it came back normal. He took me off of xaralto because he said if my platelets are below 50 I should not be taking xaralto. He wanted me on steroids but my body does not handle steroids. However he put me on dexamethasone. So I am on that for 4 days. I am to have my blood tested on Wednesday. My hemoglobin is 12.5 and platelets 22.

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Replies to "I had a bone marrow test and it came back normal. He took me off of..."

What’s unusual is that your platelets are low and yet you’re getting blood clots. So what few platelets you have seem to be ‘sticky’, enabling the clots to form.
Has your hematologist done any further testing such as a genetic test to look for mutations?
The National Institute of Health~ National Heart, Lung & and Blood Institute has some good information on platelets…high and low, possible causes and treatments for both conditions. There are several pages so make sure to read all the way to the bottom. A new link with an arrow will take you to Treatment, Causes and Risk factors, Treatments.
https://www.nhlbi.nih.gov/health/platelet-disorders/diagnosis
Steroids can help increase platelets but they also have side effects with long term use. It will be interesting to see what your next round of blood work shows. I’d like to follow along with you on this journey. Do you mind if I check back in with you later next week?