Mesenteric Panniculitis or Sclerosing Mesenteritis

Gmeg,<br />
<br />
Thanks so much for writing! Could you tell me something about the "lumps<br />
and bumps", since I've found a few pea-sized lumps under the skin of my<br />
forearm that no one can figure out.<br />
<br />
I just read a paper from NIH discussing Ankylosing Spondylitis and<br />
periodontal disease. I tried discussing with my Dentist this week when I<br />
asked her to accommodate what the paper had recommended and she said "you<br />
can't believe everything you read". I think I can put some faith in a study<br />
when it's from NIH, and I have an MS in Pharmacy so I can do some basic<br />
interpretation...gee whiz! LOL An MD or PhD doesn't guarantee you have a<br />
monopoly on intelligence. I'm sorry you have run into that behavior. Stick<br />
to your guns and look out for yourself because no one else is going to do it<br />
for you!<br />
<br />
Warmest,<br />
<br />
~Bill<br />
<br />

Looking for the best place to seek treatment for mesenteric panniculitis in the DC or Baltimore area. Recently diagnosed after 3 abdominal CTs in the last 10 months and ER trips due to nausea and abdominal pain and bloating. My primary doc is at a loss, local GI docs tell me they have only read about the disorder. Need a more experienced doctor. Thanks for any help. Once I stopped my prednisone, symptoms returned. I also have ankylosing spondylitis and had gallbladder removed years ago. Has anyone also had headache and dizziness/light-headedness with this? So glad to find this group, thanks. ~Bill

No problem @gmeg. Not everyone has Facebook. You can continue sharing here. Some members do both, others only share on Connect and others prefer to share only on the Facebook group. Luckily we are connected through the members who share on both. If any of your questions or concerns don't get addressed here, I'm confident someone who shares on both will help you out.

Happy to have you in the group.

Hi @bertbiz. It appears that you were able to post to this thread successfully. Welcome to the Connect community.
If you have any other questions about using the website, see the link How to Get Started on Connect https://connect.mayoclinic.org/get-started-on-connect/ or send me a message.

We look forward to getting to know you. Do you have Mesenteric Panniculitis or Schlerosing Mesentertis?

Glad you found a work-around. It is a usability problem with the new design. I've alerted the tech team to insert a reply window at the end of the thread. To add a new message, you have to click REPLY under the original post, which is a problem, especially with long threads like this one. We'll get this fixed in the next couple of days.

In the meantime, @bertbiz tell us a bit about yourself.

I came across this posting while doing a search and decided to join because it looks useful to me. I was diagnosed with mesenteric panniculitis on February 20 of this year after going to the emergency room in extreme pain and not being able to keep any food or liquid down. I was brought back to the rapid response room from triage because of a high heart rate which i wasn't having any chest pains at all and the e.r. doc sent me for a CT Scan which showed the mesenteric panniculitis. i was told the pain could last from 12 to 18 months which is not fun. I was put on levaquin and flagyl and told to follow-up with a g.i. doc which i did with an associate of my regular g.i. doc.. She ran some blood work and put on me on another set of meds which worked for a bit then the pain came back again. Got a chance to talk to my regular g.i. doc when accompanyming my husband on his follow-up visit and mentioned that i was diagnosed with this. I was told if i am still having issues to let him know after my husband's endoscopy which i did and was prescribed another med which helped for a bit then stopped worked like the other meds i had been on. While waiting for my husband to come out of surgery for a muscle biopsy i received a call from my g.i. doc after leaving a message to let him know that the pain came back full force a couple of days prior with nothing helping. He had me go under another endoscopy which didn't show anything to the naked eye since he couldn't do a biopsy since I am currently on coumadin and didn't come off since this was somewhat an emergency. I was put on 3 new meds at the time which somewhat helped and like before didn't last very long helping the pain. Saw him for my follow-up last monday and put on another med along sending me for another set of x-rays that showed the area that does not show up with a colonoscopy and endoscopy which those came back normal. My doc is now stumped on what to do to help control the pain so he is at the point he is sending me to either Johns Hopkins or Medstar Georgetown Hospital for further evaluation. I don't mind dealing with pain but if i get a "flare-up" it hurts to the point i can't do anything. Thanks for listening and any suggestions you might be able to provide.