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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)

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@colleenyoung

Hi @bertbiz. It appears that you were able to post to this thread successfully. Welcome to the Connect community.
If you have any other questions about using the website, see the link How to Get Started on Connect https://connect.mayoclinic.org/get-started-on-connect/ or send me a message.

We look forward to getting to know you. Do you have Mesenteric Panniculitis or Schlerosing Mesentertis?

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Replies to "Hi @bertbiz. It appears that you were able to post to this thread successfully. Welcome to..."

Hi Coleen,<br><br>I “piggy backed” my message off of some one else’s post.<br><br>Roberta<br>

Hi Colleen,
I am pleased to report that my GI Appt. went very well yesterday. I viewed my CT Scan and there was no evidence of growths, lesions, ulcers, cancer or tears anywhere. The Dr. told me that managing my MP would be the way to go. I will continue to take prednisone and start to taper off next week taking a total of 2 months to be completely done. We will assess the pain, if it comes back. I will have a second CT Scan in September to compare to the baseline one I had a couple of weeks ago. She wants me to think of this as an IBS type of thing managing "flare ups" with prednisone periodically if necessary. A biopsy wasn't indicated, either. So all in all, it was pretty good news. I am feeling better. My pain has been a 1 or 2 instead of an 8 or 9. I was very happy. I will also be doing some holistic things, such as Reiki, meditation and Yoga. I hope this is helpful to others. It was nice to have some hope...

Great news @bertbiz. Speaking of prednisone, you may be interested in the discussion that @johnbishop and @charlena are having about tapering off the drug and managing pain. https://connect.mayoclinic.org/discussion/i-was-diagnosed-with-pmr-2-12-years-ago-steroids-didnt-help/ John explains his journey in detail in terms of time and dosage.

what is the deferent between Mesenteric Panniculitis or Schlerosing Mesentertis?

Hello @mostafaamin, welcome to Mayo Connect. I don't have access to links to send you and you may have already been sent that information by other good people on the Connect. The disease typically begins as inflammation within the Mesentery (Mesenteritis Panniculitis) then it may begin to thicken and harden becoming what is referred to as "Schlerosing Mesenteritis". The third stage which may or may not occur is "Retracting Mesenteritis"
Have you been diagnosed with this illness?

Hello,

Yes he was diagnosed by CT with MP a month ago from Cairo Egypt. I

have not started any meds yet, all blood tests are normal and there is

no symptom except the feeling of having a solid part on the right side

of the abdomen .

please find the attached files

Best regards
Mostafa Said Amin

Hello @mostafaamin, I am glad to hear you are not having any major symptoms. It is possible that, if you are asymptomatic, no treatment may be necessary. I am not a Doctor and do not give medical advice. The CT scan must rule out other medical issues, but it is documented that the condition may resolve on its own without treatment. The feeling on the right side of the abdomen needs to be looked at by your physician but is similar to what I experienced. Are you still in Cairo?
Best wishes that you continue to be without symptoms.
@vdouglas

Hello again @mostafaamin, I hope you can find this information useful: https://rarediseases.org/rare-diseases/mesenteric-panniculitis/
@vdouglas

M. Were you able to make an appt with the doctor referral I gave you in Cairo who agreed to see you? Gave you all their contact info. Thx xo

M. I had tagged you in this answer on the fb page. Do you need me to resend?