Good afternoon everyone I have been dealing with my diagnosis for well over a year now. My symptoms have included the stomach/abdomen issues (as everyone else has had. As well all rapidly increasing weakness in all 4 limbs, muscle atrophy, loss of appetite, tremendous fatigue, loss of 85lbs in 5 months, GERD and stomach gurgling (among many others). And am now in a wheelchair and bedridden. To make a long story short I have seen every specialist that my PCP has suggested but no one can seem to completely understand my disease, what the diagnosis is, or much less stop this rapid progression. Today I was not accepted at the Mayo Clinic for an appointment (much less an examination) and wondered if anyone else had any advice or a similar situation?Any advice would be greatly appreciated and we are willing to go anywhere we have to for medical attention to these symptoms and hopefully a treatment plan. Thank youdennisl27 

Hello Dennis @dennisl27 , Von here. Sorry to hear you were not accepted at Mayo Clinic, I am disappointed to hear that. Iknow you have really had a tough time with your symptoms and your family has been through such difficult times in the past years. I don't have any suggestions that you haven't already tried at this moment but that doesn't mean there's not a solution or hope. So many go through this, it's sad. It is all about being persistent and finding the right doctor. Again my prayers are for you to find desperately needed help.
@vdouglas

VonThank you sir!!Your thoughts and very kind words are truly appreciated!Best regards 

Hello, I was diagnosed with MP in 2015 and having some very bad affects from post acute MP. I'm 54yo male in New Hampshire that is having a very poor time finding any medical professionals that know how to treat.