← Return to Atypical Ductal Hyperplasia (ADH) and taking an AI like Anastrozole

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@leesal123

Hi @debbie2721 , I was diagnosed with ADH in February 2022. Estrogen scores were not done since it is not cancer. I too was referred to an oncologist, where it appears standard care is to prescribe either an AI or tamoxifen for ADH and/or ALH. These meds can possibly reduce your risk of BC but I was told there are no guarantees and honestly a doctor should go through all of your risk factors with you to determine the correct treatment path. I tried Anastrozole for 17 days before having bad side effects( racing heart, palpitations- no previous heart issues). After a long summer of what appeared to be withdrawal from the meds- anxiety, hair falling out, racing heart things have settled down, but now dealing with vaginal atrophy/dryness. My past oncologist would take days to return calls about side effects and would then tell me to call my PCP who would then tell me to call the oncologist since they did not prescribe. Needless to say, I have switched all care. My new breast doctor appears to be individualizing my care based on my medical history. I am on a 6-month monitoring with mammograms and every other year an MRI. (I go in February for my 1-year check-up and the apprehension with that is nerve-wracking). I made lifestyle changes this year- I have switched to a plant-based diet, exercise daily, weights 3x a week, and have lost 40 lbs since last December thus lowering my BMI fo 6 points. At this time no meds, but if things change then we reevaluate and look at tamoxifen and any other course of action that may be needed. I also had genetic testing through a clinical study I am part of which came back all negative. Please know not everyone reacts poorly to meds. so do not let my experience scare you off of them. Do not be afraid to get a 2nd or even 3rd opinion, and never be afraid to ask questions. I write everything down before I go in and my new doctor patiently listens to all of them. Positive thoughts your way!

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Replies to "Hi @debbie2721 , I was diagnosed with ADH in February 2022. Estrogen scores were not done..."

Hi leesal123,
Thank you for responding and sharing your experiences. I am taking anastrosal at night so I don't notice any side effects.
I go back to see my oncologist in February so he can see how I am tolerating the medication. I will have a mammogram every 6 months.
I try to walk 5miles daily and I try to eat fruits and veggies. I don't think doctors explain things very well and I was caught off guard so I didn't have time to even think of questions to ask.
I hope your new doctor will have a plan for your health. I wish you the best. Thank you.