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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)
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@Weedy

HI All,
My name is Gehres. And I am a newbie. I was diagnosed with Mesenteric panniculitis this past Friday from a CT SCAN. I have been suffering from this since 2000. Urologist diagnosed enlarged prostate then Oh no Over active bladder, Opps no its Interstitial cystitis etc. My GP prescribed to me what is a questionable drug, as from what I can find on the net no other patients are being prescribed Hydroxychloroquine Sulfate a drug to treat malaria? Is this a common treatment? I tend to really question this treatment since the Steroid he put me on before the CT SCAN basically turned me in to a mess that could not get out of bed for 4 days. Severe depression aggression etc from the drug Dexamethasone. I am also on Oxycondone for the pain. I thank you all in advance for any advice or help.

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Replies to "HI All, My name is Gehres. And I am a newbie. I was diagnosed with Mesenteric..."
Von, Alumni Mentor | @vdouglas | Jan 3, 2016

Hi Gehres<br />
<br />
Welcome to this site.<br />
You may be a newby to this site but not to the illness. Sounds like quite a struggle you've had to deal with. There is a lot of good information on this site. A number of the members of this message board have been treated by some of the best and most experienced Doctors in the field.<br />
<br />
If you don't mind me asking, how are you doing right now? Are you still taking pain Meds and that unusual anti-inflammatory? <br />
<br />
Von<br />
<br />

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Weedy | @Weedy | Jan 4, 2016

Hi Von,

Thanks for the reply. It was very much welcomed.

Besides this malady I suffer from A-FIB and have gone thru a Catheter
Ablation last June that was not successful but am being scheduled for a
repeat procedure.

The Hydroxychloroquine Sulfate sent me into intense A-FIB and to the
hospital twice since Friday, So I have started to take Flecainide to stop
the A-FIb. I had not taken it since and only had 3 episodes of AFIB within 5
months until I took Hydroxychloroquine Sulfate.

I have stopped it now.

I do take as little as possible of the Oxycondone. Maybe one or two tabs of
10mg per day if needed. The pain is always there but most of the time not
too intense. Tylenol does not do anything at all.

Do you think it is worth getting an MRI to see what's really going on?

Thanks again

Cheers,

Gehres Weed

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Colleen Young, Connect Director | @colleenyoung | Jan 4, 2016

Great to learn a little bit more about you @Weedy. You may be able to provide support to other members in the Heart Health group, in particular @twptrustrek, who lives with a-fib too. https://connect.mayoclinic.org/discussion/i-have-had-5-cardioversions-one-stent-one-balioon-angioplasty-and-an-cath/
It's one big community!

Glad you've paired up with @vdouglas here too.

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TWPTRUSTREK | @twptrustrek | Jan 5, 2016

I went through the usual gamit of emotions (shock,remorse and anger ) <br />
I went to a few pshyc sessions and some xanax.<br />
I finally figured out that it was my own self that would control my condition influence and not my condition controlling me!!<br />
After 2-1/2 years of a "normal" life BOOM the a-fib reared it's ugly head again and lasted for three days before returning to normal rythm.<br />
I,m not a whiner nor a pill popper and try to overcome emotional anxieties with a busy mode of activities both physical and mental.<br />
It's good to know that I'm not the ONLY a-fib person on the planet and how others handle it.<br />
REK<br />

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