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Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20, 2023 | Replies (166)

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@dorma

I've had labored breathing for years; thought nothing of it. The CT scan of my chest was a last attempt at finding a cause for the extreme weakness and fatigue. So the MAC was accidentally found. I spent many days in bed; too weak to stay up. Sometimes sleeping for over 32 hours at a time. But the actually weakness is mostly in my legs, though I have very little strength in my hands and arms.

About this same time, my neurologist diagnosed a problem with my knees buckling and almost falling. So I finally found out about that, and he just said it will get worse. Period.

Since taking the 3 antibiotics for about 2 months, I am noticing an improvement; my body doesn't demand as much sleep, nor as long, even though I go back to bed for a while after taking a green tea capsule and a tramadol, until my body can function some. I have to rest mid afternoon; no choice, but at least it helps, and I can get back up and function a while longer. I am so very thankful to at least know what is going on, and getting some help. Time will tell.

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Replies to "I've had labored breathing for years; thought nothing of it. The CT scan of my chest..."

@dorma- You certainly have had complicated medical problems.
It’s wonderful that you notice an improvement.
It probably will take a while to heal the effects of the longstanding infection.
Regarding the weakness in arms and legs- is this something that could be helped with physical therapy?