← Return to Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Discussion
Comment receiving replies
@alpaca

@inkbkod7b I really feel for you. Trismus has been a big problem for me since 2014 but I can get one forefinger plus between my top and bottom teeth and have been able to have surgery for various things. I was told by one max fax doctor that it was too late to get any improvement but I am making a renewed attempt. Someone told me that moving the mouth from side to side was an important exercise. I'm doing it a lot!
Apart from that is there any surgery that can be done? I have not been able to find any case studies after a quick Google although there is some mention of surgery. I wish you luck and understand how awful it must be.

Jump to this post


Replies to "@inkbkod7b I really feel for you. Trismus has been a big problem for me since 2014..."

Thank you for sharing. I have been feeling isolated as I don't know anyone who has been through this, or even knew it was possible. I'm sorry you have been going through this. Everything I've read says if it isn't dealt with right away it can be permanent. I refuse to give up. Thank you for the suggestion to move the jaw side to side. My therapist had me doing exercises like that but I stopped after I couldn't move my tongue anymore. I will resume moving my jaw. My oncologist told me there is a surgery that can be done that cuts a muscle in the face. It does not have a high success rate, can only be done once, and is not permanent. I haven't gotten another opinion on that or otherwise pursued it as I want to gain more weight to get me above the low end of safe weight for my height. I hope the new year brings a breakthrough to recovery for you.