← Return to Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

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@colleenyoung

@nbkod7b, there were several discussions about trismus related to head and neck cancer treatment where members were sharing tips. I have brought everyone together, like @lindst427 @alpaca @fwpoole @srm @clevyjam @conniejeffers @hnc67 and others into one central discussion here:
- Trismus (lock jaw) after Head & Neck cancer treatment: What helps? https://connect.mayoclinic.org/discussion/lockjaw-after-sinus-cancer-surgery/

Nbkod, I notice in your profile that trismus not only prevents you from being able to open your mouth, move your tongue, or eat or talk, it has also ruled out surgery as a treatment option because you couldn't open your mouth.

So am I understanding correctly that the location of the lymphoma itself has caused trismus? Did radiation make it worse? Or was the hope that treatments would help reduce the cancer to perhaps alleviate the locked jaw?

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Replies to "@nbkod7b, there were several discussions about trismus related to head and neck cancer treatment where members..."

Thank you for bringing these discussions together. I was having trouble finding much on this topic which I still have trouble believing has occurred. I do not know the exact cause but it all goes back to the lymphoma in my mouth. I started having pain in my jaw and ear after I had a crown replaced so thought it was related to that. I saw several dentists with expertise in TMJ. Joint issues were ruled out. My mouth was slowly closing and I started having trouble speaking. That is when I was finally referred to an oncologist and tests came back with the cancer diagnosis. The expectation was that radiation would shrink the tumor and allow the jaw to open so that they could determine if surgery was necessary. With the radiation and subsequently chemo my mouth closed completely. I can get one tongue depressor between my upper and lower jaws by slowly working it in. I can then get a second one in with difficulty which is where I am now. I can't get a finger in my mouth between my teeth or move my tongue in order to do the related stretching exercises. That is why I am hopeful to hear from someone who found a way to recovery.