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CLL leukemia: Just diagnosed, what can be done?

Blood Cancers & Disorders | Last Active: Jul 20 8:54am | Replies (200)
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@loribmt

Hi @phof1 Welcome to Mayo Clinic Connect. CLL~Chronic Lymphatic Leukemia is generally a slowly developing blood disease. It can take years to progress to the point where treatment is necessary. We have several members in the forum diagnosed with CLL who have shared their experiences of their journey with this blood cancer.

Here are a few of the conversations among members with CLL

CLL: Newly diagnosed https://connect.mayoclinic.org/discussion/cll-newly-diagnosed/

Let me introduce you to @kegraves, @minnesotajim @wmisyr @rsharp @pieter1961 @carl50 @mabfp3 @sandiegostu @annieg87 @teddytwo @shirlpat, and many others who have CLL.

A little informative article for you from the Mayo Clinic website:
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/symptoms-causes/syc-20352428
I also found this article from about CLL and what to expect during progression, from Healthline.com.
https://www.healthline.com/health/cancer/what-to-expect-during-cll-progression
Were you recently diagnosed with CLL? Would you mind sharing a little more about your experience with me?

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Replies to "Hi @phof1 Welcome to Mayo Clinic Connect. CLL~Chronic Lymphatic Leukemia is generally a slowly developing blood..."
shirlpat | @shirlpat | Dec 27, 2022

A needle biopsy was done and I was suspected of having CLL. When a wide neck resection was done they found that I had Mantle Cell B non-Hodgkins Lymphoma and that I did not have CLL. I am currently on a wait and see course.

I have a Brain MRI coming up and a second PET scan to see where it is metastasizing.

Pat5

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