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Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20, 2023 | Replies (166)

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@dorma

I sent a private note to jodyalbright about the weakness she is having. No idea if she got it or not. I've been fighting with extreme weakness for nearly 2 years; many tests, several doctors, extensive blood work. It was very depressing to be useless. They finally...accidentally...discovered that I have MAC; it is like TB, only not contagious. I've been on the 3 meds about 2 months, and am seeing improvement. Still a very long way to go, but at least I finally got some answers. The CT scan of my chest showed something growing in my lungs. I am hoping that she will finally get some answers too.

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Replies to "I sent a private note to jodyalbright about the weakness she is having. No idea if..."

I am 79, weigh 95 pounds, and have DDD, Fibromyalgia, arthritis with some complications, and a few other challenges, but the weakness is by FAR the worst to deal with!

Please see our group dedicated to people with MAC and Bronchiectasis, a lung condition often associated with it. https://connect.mayoclinic.org/group/mac-bronchiectasis/
You will be able to connect with people who have MAC and learn how we live with the associated fatigue and coughing. I personally never heard of MAC before mine was diagnosed about 5 years ago, had been sick and weak for years...
Sue