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Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20, 2023 | Replies (166)

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@sueinmn

Hello Dorma, I just saw this message "Because they don't have a clue! Not even the doctors. I just sent you another note about my challenge with weakness.
Good luck!!!" in the "Just Want to Talk" discussion, but I was not sure who you were trying to connect with. It is possible that you are trying reach someone who is no longer active here.
Can you tell us a bit about yourself and what you want to talk about?
Sue

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Replies to "Hello Dorma, I just saw this message "Because they don't have a clue! Not even the..."

I sent a private note to jodyalbright about the weakness she is having. No idea if she got it or not. I've been fighting with extreme weakness for nearly 2 years; many tests, several doctors, extensive blood work. It was very depressing to be useless. They finally...accidentally...discovered that I have MAC; it is like TB, only not contagious. I've been on the 3 meds about 2 months, and am seeing improvement. Still a very long way to go, but at least I finally got some answers. The CT scan of my chest showed something growing in my lungs. I am hoping that she will finally get some answers too.