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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (764)

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@michelle151

Hi, Everyone. First I'd like to say Merry Christmas and Happy New Year.
I'm new to this forum, I was diagnosed with MGUS 2017 Light chain kappa IGA I kept telling the dr's that there was something wrong with me other than the usual, I have many things wrong with me 28 altogether ranges from really stiff joints from birth to diabetes to fibromyalgia to osteoarthritis. Although Mgus is the most worrying of them all I had to learn to live with it and now i feel it's just melted into all the other's, as many of them cross over each other for example i ache all the time feels like flu when i'm really bad, my bones ache don't even have the energy to get out of bed but i make myself as my fur babies need feeding. Since diagnoses i have learnt that i can no longer do anything whenever i like i have had to slow down, sometimes to a snails pace it can be disheartening at times but you have to focus on the positive and what's good in your life, and do things in small chunks (if that makes sense). I have been kept a close eye on by my specialist over the covid because my kappa and kappa/lambda ratio is going up all the time, my next app is 12th January 2023 i usually start worrying about know, anyways i hope my post will help someone xx

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Replies to "Hi, Everyone. First I'd like to say Merry Christmas and Happy New Year. I'm new to..."

@michelle151 Welcome to Mayo Clinic Connect. It is always an interesting journey when we have health issues. Having multiple concerns sure can feel like we are climbing a steep mountain with little help along the way, right? Getting through day by day, we learn what will be best for us at any particular time. I appreciate you sharing your experiences on what is working for you. It's not an easy thing to accept slowing down and modifying our life, but giving up is not an option.

As you have proven, getting a diagnosis of MGUS, we can go many years without significant progression. The watch-and-wait approach is the most common to do, and I'm glad you have a specialist you trust; that's so important!

Good luck on that appointment in a few weeks. Will you come back and let us know what you find out, please?
Ginger

Let us know how your appt goes! I'm right after you...mine is 1/18 with the myeloma specialist at Mayo FL. Lifting us both up for good news.