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Waldenstrom macroglobulinemia: What can I expect with chemo?
Blood Cancers & Disorders | Last Active: 12 hours ago | Replies (23)Comment receiving replies
Hi Mr. Perezy,
There is a very active support group for people with WM on Facebook. I hope you'll join us.
https://www.facebook.com/groups/wmsupportgroup
If you don't have symptoms, you may not need treatment yet. WM is a very rare disease - it represents less than 1% of cancers seen by the average hematologist/oncologist - even experienced lymphoma doctors may not be up-to-date with WM management. All of the doctors listed in the IWMF directory take a special interest in WM and are involved the latest WM clinical research. WM treatment is very seldom an emergency. Take enough time to figure out the best way forward so you'll have the best possible outcome.
All best,
Meg
The IWMF website contains a directory of hematologists/oncologists who take a special interest in WM and are involved the latest WM clinical research.
https://iwmf.com/wp-content/uploads/2022/04/IWMF_PHYSICIANS_DIRECTORY-2.pdf
Replies to "Hi Mr. Perezy, There is a very active support group for people with WM on Facebook...."
Hi, so sorry. With this being such a rare blood cancer. What lead to your diagnosis. I have very high Total IgM low igg but I’ve been super sick for while. My Dr referred me to hematology and oncology. This is one of the issues they mentioned. Trying to connect with others who might have high IgM
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@megmangin Welcome to Mayo Clinic Connect. Well, I must say you probably hold a record, being a member for almost four years and this is your first post! We're glad to have you here!
Ginger