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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)Comment receiving replies
I was also just diagnosed with Mensenteric Panniculitis. I am 38, female with a history of abdominal pain and issues. Mine was also found accidently on a catscan with Iv Contrast. My doctor was also looking for an Inguinal Hernia that was found during a lapro procedure 4 years ago. I am very fatigued, wake up with hot red face, blood in stool, nausea, most of all, abdominal pain. My doctor started me on 40 mg of steroids and I am to see a GI specialist in a few days. Nothing ever showed in my bloodwork prior to the catscan. As this is such a rare condition, I am very concerned about underlying diseases. How do you even know what stage your in? What other conditions will they check for? Is this an auto immune disease?
Replies to "I was also just diagnosed with Mensenteric Panniculitis. I am 38, female with a history of..."
peggy, please Private message me. we have over 80 people now 🙂 look foeward to heaing from you
Erin - How goes your progress on this? Did you take steriods? Are you in remission?
I was recently diagnosed with MP. I was told that I have probably had this condition forbyears. I do not have much pain but I am certainly fatigued and nauseous. I have my first appointment with a gastroenterologist next week.
Hello @viva,
Welcome to Connect. I'm very sorry to hear about your diagnosis; however, here you will find so many other members who share your pain and can offer support.
I would like to bring in @bertbiz, @mardellepoff, @miker46, @billymac65, @mommasaid, @vdouglas, @doron, @ngilson, @billindc, and @adeleccj57, in the hope that they will share their experiences with you.
Viva, we would love to get to know you better; what are you doing to manage the fatigue and nausea? Has your doctor put you on any medications that may be causing these symptoms?
I am just testing to see if I can post. I tried and had no luck a second ago.
Hello @vivaHello and welcome, sorry you have to deal with this condition. I also have MP.I am curious, were you recently diagnosed with MP because you had a CT scan and it showed up on the scan? Was this an ER visit? No pain is certainly a good thing.Wishing you well@vdouglas <br> <br> <br> <br> <br> <br> <br>
Hello
I am new here. Just been diagnosed last Thursday on this Mesenteric Panniculitis! Never heard of it before!
They gave me only paracetamol ibuprofen and endone to manage the pain.
The problem is the pain in my tummy feels more bearable but my back is killing me.
My doctor said no to prednisone but I will request that again!
I wonder since this is an autoimmune issue if we should see an immunologist instead of gastroenterologist! 29 years ago I was ANA positive and on prednisone meds. Connective tissue disease. I wonder if its back! I will request to test for that and give me better meds.
I have been unable to work last week and today I'm going back and I really don't know how am I supposed to work with my pain!
I will find out soon!
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