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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
I am in pain and in the er every 2 months..... moraphine,Nausea rx, prednisone...given at er t hen continue prednisone 5 days...I'm auto immune , still trying to figure out what involves and no one Dr wise can answer any questions...my intestines swell and I hurt base d during attacks which last until I get prednisone etc.....I am tired of routine uncontrollable routine I have every two months....what's your advice and is this similarity to anyone? Have Been told my condition is very rare
Replies to "I am in pain and in the er every 2 months..... moraphine,Nausea rx, prednisone...given at er..."
Hi pc, I'll send you a email on here. For some reason though, I don't have a link to get my emails responses last couple weeks. I'll send you the j fo to reach me though in the private email. We have 356 members
Lisa
Hi Lisa,
I sent you a private message in response to your query to me regarding this technical issue. Can you send me a message using this form https://connect.mayoclinic.org/contact-a-community-moderator/. We'll get the issue sorted out for you. 🙂
Hi @pcfromfm, there are several members who participate in both Lisa's Facebook group and here on Connect. I'd like to introduce you to several other Connect members who live with MP. Please meet @vdouglas @warlick @viva @bakb @missisays7 @doron @billymac65 @croller68 to name a few.
Your having lived with MP for over 17 years, I'm confident that you have a lot to offer. For example @billindc asks "do you have any recommendations as to what diets or treatments have worked for you?"
Do you still have the support group? thank you!
Yes we are here Mr Rick! An interesting and interested group of warriors who share as much as we can about this crazy illness!! How are you doing-pls share you experiences!
Hello @ricklaff51 , I join @pcfromfm in welcoming you to the Mayo Clinic Connect. Yes the Connect community is still active and ready to listen. As you may already know, we are a group of patients and caring individuals who have experienced the struggles of dealing with Mesenteric Panniculitis or Sclerosing Mesenteritis.
How are you today and what brings you to the Connect?
@vdouglas
von
Hi Rick, I add my welcome. The support in the Mesenteric Panniculitis/Sclerosing Mesenteritis group remains active. Glad to have you join us.
Please note that I removed your personal email from your message. Mayo Clinic Connect is a public forum and we recommend not posting your personal contact information to avoid getting unwanted spam.
Connect
Hi Lisa-I'm interested in any group that might be able to offer suggestions-have MP. Diagnosed about 17 years ago. I live very far north, in an area with really no support. So all info welcome!!