← Return to Always run down with MGUS

Discussion

Always run down with MGUS

Blood Cancers & Disorders | Last Active: May 29 10:06pm | Replies (54)

Comment receiving replies
@gingerw

@nancy1900 Nancy, like you, I am a caucasian female, and have long been puzzled by different value ranges I see based on racial identity. Here is an article from the American Kidney Foundation about the differing ranges of eGFR, and I daresay it can be used as an explanation for other values.

Ah, so you are a zebra, also, having conditions that normally do not appear in women! I am also a CKD patient, now Stage 5 and on dialysis. It seems I have always flaunted the "norms", too! My MM is the mre rare type, the cause of my CKD is an ultra-rare autoimmune condition diagnosed less than 50 times worldwide, you get the picture.

Here's to a sunny [if nothing else, in your heart] holiday season to you. i look forward to interacting with you more.
https://www.kidney.org/atoz/content/race-and-egfr-what-controversy
Ginger

Jump to this post


Replies to "@nancy1900 Nancy, like you, I am a caucasian female, and have long been puzzled by different..."

Yes, I will look up your MRE type this evening. And look at the Kidney article you referred to. How very special to meet you! I hope you are enjoying your holiday too. We just finished Christmas Eve dinner, prime rib. Yummy.

I will further research your condition. Autoimmune runs in my family too. When I told one of the Urgent Care doctors that I felt like after I turned seventy that I was falling apart, he said, “Your warranty is up.” I laughed and asked him I could get an extended warranty. We both had a chuckle.

I love to laugh and feel the joy of life. It hasn’t always been that way. After the kidney failure, which I recovered from, albeit a little damaged—my last GFR was much better. I now have about 29% function in that left kidney, and my right kidney does most of the work. But my life has taken on new meaning since that and I have seen everything in a better light. Now a new challenge, but I am happier than I have ever was when my body seemed OK.

Blessings to you. You are a trooper. And the weather here outside is wet and cold but as you say, “Sunny in my heart,” and in your heart as well, I expect.

Sincerely,

Nancy Benson