← Return to New to Pegasys for ET - advice please!

Discussion
lourdene (@lourdene)

New to Pegasys for ET - advice please!

Blood Cancers & Disorders | Last Active: Feb 5 8:49pm | Replies (20)

Comment receiving replies
@eileen11108

I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs and bone marrow biopsy. I have ET JAK2.

The hematologist put me on 500 mg Hydroxyurea daily. I started getting daily headaches and a first ever vertigo attack. Hematologist told me to stop HU for a few weeks while I saw ENT. I had various negative tests so she started me back on HU 500 mg every other day. I think my body is starting to adjust to HU. Last lab my platelets were 498. I see her on January 3. I am hoping I can continue on every other day.

There is a lot of information on Pegasys on this website. Good luck with your decision, Eileen

Jump to this post


Replies to "I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs..."

Hi lourdene,

Are you taking Pegasys? What is your experience so far? Are you starting with low dose, frequency?

Just an update on Hydroxyurea and my headaches. I have been having daily headaches and twice they went to a migraine. I am starting to find it difficult dealing with the headaches and think I possibly might be HU intolerant.

I am out of our home area for a couple months. I will discuss the possibility of Pegasys with my hematologist on our return and also look to get an appointment with an MPN specialist.

Best wishes, Eileen