Replies to I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs…

← Return to New to Pegasys for ET - advice please!

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Blood Cancers & Disorders | Last Active: Feb 5 8:49pm | Replies (20)

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@eileen11108

I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs and bone marrow biopsy. I have ET JAK2.

The hematologist put me on 500 mg Hydroxyurea daily. I started getting daily headaches and a first ever vertigo attack. Hematologist told me to stop HU for a few weeks while I saw ENT. I had various negative tests so she started me back on HU 500 mg every other day. I think my body is starting to adjust to HU. Last lab my platelets were 498. I see her on January 3. I am hoping I can continue on every other day.

There is a lot of information on Pegasys on this website. Good luck with your decision, Eileen

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Replies to "I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs..."

eileen11108 | @eileen11108 | Feb 7, 2023

Hi lourdene,

Are you taking Pegasys? What is your experience so far? Are you starting with low dose, frequency?

Just an update on Hydroxyurea and my headaches. I have been having daily headaches and twice they went to a migraine. I am starting to find it difficult dealing with the headaches and think I possibly might be HU intolerant.

I am out of our home area for a couple months. I will discuss the possibility of Pegasys with my hematologist on our return and also look to get an appointment with an MPN specialist.

Best wishes, Eileen

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