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You sound like me. I am newly diagnosed and have noticed a steady decline in my energy level. I won’t go into detail here because I am not that fluent in all the names of things yet. But In addition to MGUS I also got a diagnosis of leukopenia for which my Hematologist/oncologist is treating me with B12 for now and doing watchful waiting. I broke out with a cold sore on my lip yesterday and was feeling quite ill last night, extremely tired and chills, but no fever. I haven’t had a breakout cold sore for a long, long time. But I went through a lot of physical stress last week, sprained my ankle, inflammation of my spine due to my spondylolisthesis . So I chalked the breakout up to the physical stress. I admit in the back of my mind I wondered if MGUS had anything to do with it. I just don’t recover from day to day lime I used to.
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@nancy1900 Welcome to Mayo Clinic Connect. It sounds like you have many things going on, and certainly a cold sore can be a symptom of all the stress you are under, as you deal with different conditions! What did you do for that cold sore, may I ask?
As you start your journey with MGUS, you'll read about the shared experiences here from members who are also going through this. The most of us do the watch-and-wait thing, getting bloodwork every three or six months, tracking our situation. That said, it seems like the majority of people go for years without any progression of the disease. My simple advice is to not focus on it, wondering if/when there will be problems. Live your life, eat a healthy diet, get moderate exercise, reduce your stress as best you can.
What questions do you have for me?
Here is what Mayo Clinic has to say about low white blood cell counts:
https://www.mayoclinic.org/symptoms/low-white-blood-cell-count/basics/definition/sym-20050615
Ginger