← Return to New to Pegasys for ET - advice please!
DiscussionNew to Pegasys for ET - advice please!
Blood Cancers & Disorders | Last Active: Feb 5 8:49pm | Replies (20)Comment receiving replies
Replies to "Good question! I have been going over this in my mind for a couple of weeks...."
I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs and bone marrow biopsy. I have ET JAK2.
The hematologist put me on 500 mg Hydroxyurea daily. I started getting daily headaches and a first ever vertigo attack. Hematologist told me to stop HU for a few weeks while I saw ENT. I had various negative tests so she started me back on HU 500 mg every other day. I think my body is starting to adjust to HU. Last lab my platelets were 498. I see her on January 3. I am hoping I can continue on every other day.
There is a lot of information on Pegasys on this website. Good luck with your decision, Eileen