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Victories

Posted by rivermaya34 @rivermaya34, Nov 3, 2021

We spend so much time focusing on how to manage our pain, why not shout out praises for small victories and encourage one another to persevere and reach goals? 🙂

Interested in more discussions like this? Go to the Neuropathy Support Group.

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bovic21 | @bovic21 | Dec 22, 2022
In reply to @marthamurphysc "What is the Protocol? I’m rather new to this group and don’t know what this Protocol..." + (show)
Profile picture for marthamurphysc @marthamurphysc

What is the Protocol? I’m rather new to this group and don’t know what this Protocol encompasses. Where does one find that info/

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I'm going to tag @johnbishop and let him discuss the the Protocol. He has links to prior discussions about it.
But the short answer is it's about 7 or8 vitamins and supplements that you take and for many people it helps to control PN.

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John, Volunteer Mentor | @johnbishop | Dec 23, 2022
In reply to @bovic21 "I'm going to tag @johnbishop and let him discuss the the Protocol. He has links to..." + (show)
Profile picture for bovic21 @bovic21

I'm going to tag @johnbishop and let him discuss the the Protocol. He has links to prior discussions about it.
But the short answer is it's about 7 or8 vitamins and supplements that you take and for many people it helps to control PN.

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Thanks for the tag @bovic21.
@marthamurphysc and @charlotte1944 - Here's a link to the discussion on the protocol which has R-ALA as one of the supplements that help with neuropathy:
-- Have you tried the new Protocol 525 product for neuropathy relief?
https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/
I also posted my neuropathy story in the Member Neuropathy Journey Stories: What's Yours? discussion here - https://connect.mayoclinic.org/comment/310341/.

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johnmacc | @johnmacc | Dec 23, 2022
In reply to @charlotte1944 "I missed John’s discussion on R-AlA what is it?" + (show)
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I missed John’s discussion on R-AlA what is it?

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It is r alpha lipoic acid.

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magicwoo | @magicwoo | Dec 26, 2022
In reply to @raebaby "I'm 80 years old, neuropathy from chemo and I am getting better! I was telling another..." + (show)
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I'm 80 years old, neuropathy from chemo and I am getting better! I was telling another reader in the cancer section that 2 months ago I was limping along on tours in Seattle with my daughter, having to sit down constantly. I was leaning against buildings because I couldn't just stand there freely. Now, I am once again walking just fine and chopping weeds out in my yard. I live on 22 acres. My kids check up on me, but I live alone There is hope!

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Good for you! That's awesome, keep up the positivity!

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26sabrina | @26sabrina | Dec 27, 2022
In reply to @raebaby "I'm 80 years old, neuropathy from chemo and I am getting better! I was telling another..." + (show)
Profile picture for raebaby @raebaby

I'm 80 years old, neuropathy from chemo and I am getting better! I was telling another reader in the cancer section that 2 months ago I was limping along on tours in Seattle with my daughter, having to sit down constantly. I was leaning against buildings because I couldn't just stand there freely. Now, I am once again walking just fine and chopping weeds out in my yard. I live on 22 acres. My kids check up on me, but I live alone There is hope!

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What did you do to gain your strength?

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maggieaz | @maggieaz | 5 days ago

I am still getting used to this platform, so pls excuse me if this is in the wrong spot.
I appreciate all the feedback and would love to hear more from anyone with a stimulator in place. CRPS.
Thank you ,
Maggie

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John, Volunteer Mentor | @johnbishop | 4 days ago
In reply to @maggieaz "I am still getting used to this platform, so pls excuse me if this is in..." + (show)
Profile picture for maggieaz @maggieaz

I am still getting used to this platform, so pls excuse me if this is in the wrong spot.
I appreciate all the feedback and would love to hear more from anyone with a stimulator in place. CRPS.
Thank you ,
Maggie

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@maggieaz - Here is a list of discussions where members have shared their questions and experiences with stimulators for CRPS if you want to scan through them - https://connect.mayoclinic.org/search/discussions/

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maggieaz | @maggieaz | 4 days ago

Thank you.
I am about the read through these now.
I appreciate your help.

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maggieaz | @maggieaz | 4 days ago
In reply to @johnbishop "@maggieaz - Here is a list of discussions where members have shared their questions and experiences..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

@maggieaz - Here is a list of discussions where members have shared their questions and experiences with stimulators for CRPS if you want to scan through them - https://connect.mayoclinic.org/search/discussions/

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@johnbishop
Thank you.

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maggieaz | @maggieaz | 2 days ago

John,
I appreciate you passing on this information.
I received the book that you recommended yesterday.
Just started it but already fascinated. I am looking up medical terms that I not familiar with; I am fairly well educated in the emotional / psychological side of things.

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