Atypical lobular hyperplasia: Did you have surgery?

@keepshining2003, so hard to make these decisions, isn't it. I moved your question about continuing to monitor vs surgery vs tamoxifen to this existing discussion:
- Atypical lobular hyperplasia: Did you have surgery? https://connect.mayoclinic.org/discussion/atypical-lobular-hyperplasia/

I did this so you can read the previous helpful posts and connect easily with fellow members like @jdriver @delormv @leesal123, who have experience with atypical hyperplasia.

Is your leaning towards surgery or monitor and tamoxifen?

I am so concerned when I was diagnosed with this. Had an excision to remove. The surgeon said I have a high risk for cancer. Wants me to see an oncologist. I am scared they are going to put me on Tomoxapan. There are so many side effects. So confused and scared

I had mine removed and they are now sending me to an oncologist

@rebecca55 thank you so much for responding and sharing your experience. After your appointment with the oncologist, would you mind sharing the recommendations? Thank you 🙏

Welcome @rebecca55, I know being diagnosed with atypical lobular hyperplasia is scary. You kinda of feel like a ticking time bomb. I know fellow members like @amolson @wendles @elsie37 @dmart37 @smaac001 @keepshining2003 @jdriver @leesal123 and @delormv have been there too.

I'm glad that you are being referred to an oncologist to discuss your options for treatment and monitoring. Be sure to share your fears and concerns about take tamoxifen. They can carefully lay out the risks and benefits of taking the medication or not for you specifically. As your mind starts to race, making notes of questions to ask can help make that worry into something constructive to help you prepare.

I hope you have family around you for the holidays and it will help to distract you while you wait for your appointment.

Yes, I am very scared and my mind is racing all over the place. But thank you so very much for the kind words and the good advice which I will do my best to adhere to! Yes, I have a wonderful family and an amazing support and my husband, so I am blessed to at least be going into something like this with supportive loved ones! You have a very merry Christmas and take care of yourself as well. Thank you!

My daughter had ALH. They did a biopsy and they decided to watch it with 6 month checks. It disappeared on its own, but obviously they continue to monitor.

Thank you for your reply. My sister had breast cancer and was prescribed Tamoxifen. She became very depressed because of all the side effects. She was put on an antidepressant and made it worse. Since I have atypical lobular hyperplasia, I am not going to take this but still looking for a different medication without side effects. Wish there was a natural medication.

Yes, sure will!

How old was your daughter?