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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)Comment receiving replies
Hi, @myboyzr2, Welcome to Mayo Clinic Connect! I’m glad you found this forum too. It really helps to meet others who are traveling along the same road. There are several discussion related to MGUS~Monoclonal gammopathy of undetermined significance.
(MGUS) is a condition in which an abnormal protein — known as monoclonal protein or M protein — is in your blood.
For most people it doesn’t pose a problem but it can progress into more serious diseases. We have quite a few members in our forum who have also been diagnosed with MGUS. I’m posting links to discussions on MGUS below, along with Mayo Clinic’s webpage on MGUS.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
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– Does anyone else have MGUS? https://connect.mayoclinic.org/discussion/mgus-diagnosis/
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– MGUS: Please, let me know I not alone https://connect.mayoclinic.org/discussion/mgus-2d464e/
– MGUS diet: Any tips on food to enjoy or prevent progression? https://connect.mayoclinic.org/discussion/mgus-bgus-diet/
I’d like to introduce you to @pmm, @momsys,@mommatracy5, and @dazlin who were diagnosed with MUGA. These would be great people to Connect with for support. ☺️
I know waiting for labs is so stressful. Wishing you some good news on yours! Are you currently on any treatment for your MGUS?
Replies to "Hi, @myboyzr2, Welcome to Mayo Clinic Connect! I’m glad you found this forum too. It really..."
I know the feeling. When I was first diagnosed with MGUS, I felt like I had the sword of Damocles hanging over my head. Every check up produced great anxiety. This lasted years. I now have acquired several other conditions that are eventually lethal. MGUS has dropped in importance.
It took a while to get a thorough workup for MGUS. I recommend the Mayo.
I am glad you survived the embolisms. I hope you are being treated. My husband experienced them and survived too.
The best words I can offer are not comforting. They are, however, what we all must confront: life is ultimately fatal. Something will kill me someday. So my best option is to live the best I can each day, and trust in God.
Just got diagnosed with MGUS. Found it doing blood work for liver biopsy since I have just been diagnosed with cirrhosis which runs in my family. All of us non drinkers. I am 72.
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Ty Lori. Not currently. I've got to do a 24 hr urine and follow up with hema/onco in 3 month.
As I read other symptoms I realize they seem to be related. Hip pain, numbness tingling in my hands. I'm stressed. I've had big Heath issues currently dealing with pulmonary embolisms in both lungs.