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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
Liver Cancer | Last Active: 6 hours ago | Replies (199)Comment receiving replies
I also have Cholangiocarcinoma and live in Houston. I have received Chemotherapy consisting of the drugs Cisplatin and Gemcitabine for a year. This treatment has been successful in keeping the cancer from spreading and reducing the size of the 3 lesions I have as revealed by the PET Scans. Recently my Oncologist has switched me to Immunotherapy using the drug Imfinzi which is not so hard on my kidneys and uses the bodies' own Immune System. I receive my treatments with Genesis Medical Group which is closer to my home and transportation than MD Anderson. Of course MD is the best cancer hospital in the world and my daughter used them when when she needed surgery to remove her Thyroid Cancer. Feel free to contact me at anytime on the Bile Duct Cancer forum or here.
Replies to "I also have Cholangiocarcinoma and live in Houston. I have received Chemotherapy consisting of the drugs..."
Hi! I am from Europe. My mother has Cholangiocarcinoma. We were told that it is inoperable and there is no Targeted therapy. She is only 53. I still have hope and I am looking for help. How are you? Can you recommed any treatment / consultation in the USA ?
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Hello, so happy to
hear that you have done well on the chemo for a whole year! My husband was on other chemo as they first though he had pantritic cancer. Now that it is bile duct he is scheduled to start with the same chemo and Imfinzi as you. He has been through a lot with chemo being very hard on him and then the whipple which they couldn't complete because of spreading of the cancer. Please let me know how you are doing on the new drug and are you just on the Imfinzi? With all of his side effects I think he may be only on the Imfinzi also.