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Hello. I'm 36 yo female. I was diagnosed with ET as well about 1.5 years ago. Today my WBC had come down to 11.4 and platelet count is 773. My doctor started me on HYDROXYUREA 500 MG today. I do have a history of DVT's so I have to take baby aspirin everyday. My doctor doesn't understand what caused this disorder as it went unnoticed for many years through another health care provider.
I've never been on chemotherapy in my life until today. I have had 2 blood transfusion in 2016. From what I'm reading as I research this medication and more about ET is that there is no cure and I'll have this disorder the rest of my life and it typically happens to people aged 60 or older but can happen to younger people. Has anyone made any changes to their lifestyle/diet and seen a decrease in the platelet count? Any suggestions?
Replies to "Hello. I'm 36 yo female. I was diagnosed with ET as well about 1.5 years ago...."
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Younger people are turning up more frequently with MPNs, and research is giving this a lot of attention. Hopefully this will lead to better new therapies!
Eating heart healthy, maintaining a good weight, and getting regular exercise to maintain circulation is good for everybody, especially people with ET. Whatever can lower your overall clot risk is good.
But none of that will lower your platelets to normal levels. There are lots of scam artists out there willing to tell you otherwise to get your money.
Women in childbirth years are increasingly being prescribed Pegasys because it is safe to use while pregnant. HU is not. Maybe chat with your doc about this? It doesn't come up with us older ladies.