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Replies to "Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started..."
Blood Cancers & Disorders | Last Active: Feb 9, 2023 | Replies (63)
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Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started me on weekly injections of Pegasys 1/4th vial. I went from 951 to 900 in one month. May need to increase my dose as they wanted to see more movement. Will wait to see next month's number. I seem to tolerate this dose so far ok. A little sleep disruption, but not as fatigued. Main hope is that it stop the progression. And yes, tier 5 medication...yikes $. Blessings to all on your recovery journey!
Replies to "Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started..."
Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2. This medication is inexpensive. What was your doctor’s reasoning?
Best wishes for your journey. Eileen
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I hope you will continue to update us on your experience with Peg. I hear it takes longer to work, though people respond at different rates to all these meds.
It took HU over a year to move my platelets from 800 to 400s. I am very stable and satisfied with things at the moment, but all of the oral meds for ET can stop working at any time, so would be helpful to know how Peg affects older people over the long haul.
One of the fellows I talked to in the UK was moved from HU to Peg at age 75. Over there, they get it free from the NHS if HU stops working, but mental health screening is done before Peg is prescribed, and patients receive anti-depressants as needed to alleviate side effects.
Thank you for posting!