Victories

Congratulations @cookierockwell! Very impressive. You knocked my socks off with that BIG victory.

May I ask how you graduated to a walker from a wheelchair? It must have taken hard work. Good for you!

Finding the right doctors can make all the difference. Way to advocate for yourself in doing so. Do you have more plans towards achieving small victories in 2023?

Thanks, Rachel. I'm not completely sure why/how I'm up and out of my wheelchair. I have multiple conditions in addition to peripheral neuropathy. I think having doctors who listen to me and treat my conditions with new/different medications and procedures, as well as my daily swimming in warm weather and daily yoga are what led me to being able to use my walker.
I started with walking leaning on my wheelchair as much as possible, which wasn't much at all at first, and then finally decided to go out to a doctor's appointment with my walker. It was terrifying, but I guess I was feeling feisty lol. The scariest part is that the top half of my feet are very numb, and my left foot kind of drags sometimes, but I was still able to do it. I get a lot of pain when I get home and the next few days, but I just keep doing my home pain management and get on with it.
If this doesn't last very long, I'm okay with it. I'll remember it like I remember the first time a few years ago when I did a half hour of laps in the pool using just my arms. It was amazing. Felt like Senior Superwoman lol.

Best wishes to all for victories large and small.
Cookie

I just got rid of my walker, it was wonderful. I’m still trying to keep my balance in check but walking with crutches instead. Big victory for me, hopefully you will be there soon as well! Good for you!!!

Wow. Thank you for sharing this. I sometimes need to be reminded that I do have good days, times when I don't even realize that my neuropathy is bothering me. I go on my day and accomplish most of my plans. Each day I am grateful for all that I have, my friends, my cats, my home and my overall general good health. I, too, have learned to take time, turn off the noise and be still and quiet. Learning to meditate was hard for me but I found there are many ways to meditate. Just find your own.
My victory is not letting neuropathy be the only thing in my life.

I just got rid of my walker, it was wonderful. I’m still trying to keep my balance in check but walking with crutches instead. Big victory for me, hopefully you will be there soon as well! Good for you!!!

I can walk unassisted a little distance with my PN, but usually use a walker when out. But this morning at therapy I rode an adult tricycle and it was exhilarating! I use Amazon a bit to shop and order things, but my husband is addicted. This afternoon, I picked out a tricycle and put it in his shopping cart. I saw he already had a case of energy drinks in the cart for himself, so I added another tricycle to the cart, this one having a little back seat bench for another person. If he has that much energy, he could go with me and pedal me around if I get tired. So, I don't care where the tricycle comes from, but I know Santa sees it in his cart and maybe do some last minute Christmas shopping somewhere!

I can walk unassisted a little distance with my PN, but usually use a walker when out. But this morning at therapy I rode an adult tricycle and it was exhilarating! I use Amazon a bit to shop and order things, but my husband is addicted. This afternoon, I picked out a tricycle and put it in his shopping cart. I saw he already had a case of energy drinks in the cart for himself, so I added another tricycle to the cart, this one having a little back seat bench for another person. If he has that much energy, he could go with me and pedal me around if I get tired. So, I don't care where the tricycle comes from, but I know Santa sees it in his cart and maybe do some last minute Christmas shopping somewhere!

2022 has been a tough year for me physically. This year a neurologist told me I had PN after an EMG test, then I had back surgery and in the last six months I've had three heart procedures.

But now, my back is great, my heart is much better and because of this group my PN is much better.
From this group, John in particular, I learned about taking R-ALA, which has diminished the pain I was starting to get in my feet. And yesterday I starting taking all the ingredients of the Protocol. No doubt 2023 will be a better year!

And like others have mentioned, so many are much worse off than I am. When I start complaining about numbness in my feet and hands, I stop and think about how much worse it could be.

I thank God that he led me to this group. And I pray that others who are struggling with PN will find help here also!

Thank you to all the Volunteer Mentors and have a Happy Holiday season!

2022 has been a tough year for me physically. This year a neurologist told me I had PN after an EMG test, then I had back surgery and in the last six months I've had three heart procedures.

But now, my back is great, my heart is much better and because of this group my PN is much better.
From this group, John in particular, I learned about taking R-ALA, which has diminished the pain I was starting to get in my feet. And yesterday I starting taking all the ingredients of the Protocol. No doubt 2023 will be a better year!

And like others have mentioned, so many are much worse off than I am. When I start complaining about numbness in my feet and hands, I stop and think about how much worse it could be.

I thank God that he led me to this group. And I pray that others who are struggling with PN will find help here also!

Thank you to all the Volunteer Mentors and have a Happy Holiday season!