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Pain in the butt - Can't sit down
Chronic Pain | Last Active: Nov 6, 2023 | Replies (276)Comment receiving replies
I too have what you describe, I have found the cause of mine. Look up tarlov or meningeal cysts. It will be better for you if you read this information rather than me giving you information that isn't accurate. These have been on my mri's and previously never reported because medical students have been taught these are incidental findings. Dr Frank Fiegenbaum in Dallas Texas. Hope this sheds light on your situation.
Replies to "I too have what you describe, I have found the cause of mine. Look up tarlov..."
@1needanswers
Hi Christine, and welcome to this group of brave and struggling souls. What you have sounds VERY painful. And frustratingly difficult to deal with, since the spine is basically inaccessible except through surgery. You say you know what caused you to have Tarlov's, what was it? If you do not mind my making a suggestion, you might also want to check out the Spine Health group here on Connect:
https://connect.mayoclinic.org/group/spine-health/
In fact, I notice there is at least one discussion in that group about Tarlov's (there might be others), here's a link: https://connect.mayoclinic.org/discussion/perineural-or-tarlov-cysts/
My wife suffers from neuropathy and I spend my early morning hours perusing this forum, trying to find things to help her, and I have found some interesting things since I joined early this year. I hope you find some things to help you as well. I read your little bio about having 5 kids and 8 grandkids. So at least you get a lot of distraction from your pain, no? 😉 Best, Hank
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Wow...I have most symptoms such as this, but then also...horrific vaginal burning, which HAS decreased. Pelvic floor therapy over time helps a lot. I diagnosed mine as truly similar to Pudendal nerve neuralgia. Thanks for YOUR onsite. God bless.