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Pain in the butt - Can't sit down

Chronic Pain | Last Active: Nov 6, 2023 | Replies (276)

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@qball2019

Has anyone seen Tarlov cysts (also known as perineural cysts)? Request your records and look through your imaging reports. Most doctors refuse to believe that they cause issues but they do when they grow a little larger. I have 5-6 of them compressing the nerves in my sacral area. I cannot sit on my right butt cheek at all and bending is nearly impossible. The compression is causing issues with everything below the waist and the inflammation is causing numerous issues above the waist as well.

I used to have Fentanyl patches but was switched to Ketamine troches (dissolve under the tongue) as an opioid alternative. IT WORKS for all kinds of pain, especially the nerve pain for me. I also take gabapentin, tramadol, and baclofen but the ketamine is the best pain relief I've had in 17 years!!

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Replies to "Has anyone seen Tarlov cysts (also known as perineural cysts)? Request your records and look through..."

@qball2019 It sounds like you are in an incredible amount of pain due to Tarlov cysts compressing nerves on your sacral area.

May I ask if there are any treatments to directly address the cysts?