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Pain in the butt - Can't sit down

Chronic Pain | Last Active: Sep 23 9:49am | Replies (336)
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@dayletriay53

I too have suffered with PNE. All the injections, nerve stim..didn't work and migrated one lead wire that embedded into my sacrum. Had the stim removed.
My most effective treatment was cryoablation with Dr. J. David Prologo, Emory Hospital Atlanta Georgia. You can Google, YouTube and research NIH.com.
But recently went on Lyrica. This calmed the buttock muscle spasms and hand tremors.
My new Neurogist explained it this way.
It's neuropathy! With all the issues that come with this and since Lyrica did help...it's neuropathy.
Maybe I had a mild case of shingles and it settled in my pelvis. Road a bike in 2009 and the pelvic floor pain was horrific. My Gyn did a hysterectomy...worse thing to have done to a PNE patient. Now I know☹️
I'm 67 now and manage as well as I can. Determined not to let this disrupt my life, is my daily prayer.

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Replies to "I too have suffered with PNE. All the injections, nerve stim..didn't work and migrated one lead..."
1mepnurse | @1mepnurse | Sep 26, 2020

Hi dear..I got PNN about 8 weeks ago. Everyone's post are very discouraging, but I take one day at a time? This week I had a Pudendal Nerve Block under CT guidance, but did not help. Also had Ganglion APA or such nerve blocks..did not help.
Since your cryoablation...pls tell me what it has helped & I pray u r much better ! Thinking I MAY have a pinched off nerve from my horrible spine or from scar tissue. I have had 5 back surgeries & L1- 2 is horrible. It's nerves do go to the rectal area.
Prayers for us ALL. Stay strong. God is on our side, gang !!

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