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How did you make the final decision to begin HU protocol for ET?

Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)
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@chetalbin

Thank you for your reply. It’s so helpful to hear how others are doing with ET & HU.

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Replies to "Thank you for your reply. It’s so helpful to hear how others are doing with ET..."
annetterzam | @annetterzam | Dec 22, 2022

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started on HU last week. I take 500 mg every other day so far I have no side effects.

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eileen11108 | @eileen11108 | Jan 6, 2023

I have been lowered from 500 mg daily to 500 mg Hydroxyurea every other day. First month my platelets dropped to 498. Second month they just dropped to 434. So I can continue every other day for now. The change was because of daily headaches. Headaches are a side effect of HU but now they are much less.
Eileen

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