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How did you make the final decision to begin HU protocol for ET?
Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)Comment receiving replies
If you are extremely hesitant you could ask if you could start slowly with HU. I started taking 500 mg daily but had headache issues. I stopped taking for a few weeks and then went back on 500 mg HU every other day. Last count was 498. I see hematologist again on
January 3. Pending the lab that day I am hopeful I can stay on every other day.
If you do start HU remember to drink a minimum of 64 ounces of fluid a day.
Best wishes for your journey, Eileen
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Thank you for your reply. It’s so helpful to hear how others are doing with ET & HU.