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How did you make the final decision to begin HU protocol for ET?

Blood Cancers & Disorders | Last Active: Jan 22, 2023 | Replies (75)
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@chetalbin

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m waiting to see a MPN specialist. My platelets count is 681 as of yesterday. Any comments or suggestions appreciated

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Replies to "I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m..."
eileen11108 | @eileen11108 | Dec 21, 2022

If you are extremely hesitant you could ask if you could start slowly with HU. I started taking 500 mg daily but had headache issues. I stopped taking for a few weeks and then went back on 500 mg HU every other day. Last count was 498. I see hematologist again on
January 3. Pending the lab that day I am hopeful I can stay on every other day.

If you do start HU remember to drink a minimum of 64 ounces of fluid a day.

Best wishes for your journey, Eileen

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